ArticleBMC palliative care2024
Experience of care from the perspectives of inpatients with palliative care needs: a cross-sectional study using a patient reported experience measure (PREM).
Article in BMC palliative care, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
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Who cites it
7 citing papers in PubMed.
- A cost analysis of implementing facilitated improvements in hospital palliative care using patient reported experience measures: the LEAHP (Listen Empower Act - Hospital Palliative care) bundle.BMC palliative care · 2026Article
- Carer and patient experiences in a virtual hospital: service insights from a mixed-methods analysis of reported experience measures.Journal of patient-reported outcomes · 2026Article
- Developing a programme theory of implementing patient-reported outcome measures for older people living with severe frailty: a mixed methods study using the consolidated framework for implementation research.Journal of patient-reported outcomes · 2025Article
- Improving patient reported experience in inpatients with palliative care needs: a pre-post quality improvement study.BMC palliative care · 2025Article
- Using consideRATE to Evaluate Patient Experience in a Cancer Center: Psychometric and Healthcare Assessments.Psycho-oncology · 2025Article
- Understanding the acute care context to inform palliative care improvements: a qualitative study of hospital-based multidisciplinary clinicians.BMC palliative care · 2025Article
- Use of the consideRATE and integRATE Measures to Assess Care Quality in Inpatient Palliative Care.Journal of pain and symptom management · 2025Article
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundImproving palliative care for inpatients is urgently needed. Data from patient-reported experience measures (PREM) can assist in identifying areas for focused improvement. This study aimed to describe patient reported experience of care in inpatients with palliative care needs, to inform a baseline understanding of care experience and identify key areas for improvement.
methodsCross-sectional study design where inpatients with palliative care needs were invited to complete 'consideRATE,' a patient reported experience measure of care, over six months in 2022. Inpatients with palliative care needs receiving care on an oncology, general medicine/renal and general medicine/respiratory ward (n = 3) at an Australian metropolitan hospital were screened for eligibility. Carers could provide proxy responses where inpatients were unable to participate. Descriptive statistics were used to analyse quantitative ratings, whilst free text responses were analysed using integrated thematic analysis.
resultsOne-hundred and twenty participants (108 patients and 12 carers) completed consideRATE. The questions with the highest number of 'very good' responses were attention to symptoms, attention to feelings and attention to what matters most; the questions with the lowest number of 'very good' responses was attention to patients' affairs, what to expect, and the environment of care. Almost half (n = 57, 48%) indicated that attention to patients' affairs 'did not apply' to their inpatient stay. Analysis of 532 free text responses across 8 questions highlighted the importance of feeling supported, feeling informed, feeling heard and navigating the clinical environment.
conclusionEnabling inpatients with palliative care needs to provide feedback about their experience of care is one method of ensuring improvements matter to patients. Supporting clinical teams to understand and use these data to make tailored improvements is the next step in this multi-phase research.
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