Evidence map›Paper›PMID 39025956›Full record

ArticleJournal of perinatology : official journal of the California Perinatal Association2025

Parent and staff focus groups to address NICU racial inequities: "There's radical optimism in that we're in a different time and we're not doing it alone".

Kayla L Karvonen, Olga Smith, Brittany Chambers-Butcher, Patience Afulani, Tameyah Mathis-Perry, Khuzaima Rangwalla, Monica McLemore, Elizabeth E Rogers

Abstract read
In one paragraph

Article in Journal of perinatology : official journal of the California Perinatal Association, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

  1. Article
  2. Diversity, equity, and inclusion considerations for anti-racist, equity-focused NICU family mental health.Journal of perinatology : official journal of the California Perinatal Association · 2026
    Review
  3. "Each family has a story:" lived experiences of NICU families from staff perspectives.Journal of perinatology : official journal of the California Perinatal Association · 2026
    Article
  4. Article
  5. Article
  6. Audio-diary reflections after community focus groups to address local racial inequities in the neonatal intensive care unit.Journal of perinatology : official journal of the California Perinatal Association · 2025
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Kayla L KarvonenDepartment of Pediatrics, University of California San Francisco, San Francisco, CA, USA. kayla.karvonen@ucsf.edu.ORCID http://orcid.org/0000-0001-8213-6697
Olga SmithIndependent Researcher, Antioch, CA, USA.
Brittany Chambers-ButcherCalifornia Preterm Birth Initiative, San Francisco, CA, USA.
Patience AfulaniDepartment of Epidemiology and Biostatistics, University of California San Francisco, San Francisco, CA, USA.
Tameyah Mathis-PerryMorehouse School of Medicine, Atlanta, GA, USA.
Khuzaima RangwallaUniversity of California San Francisco School of Medicine, San Francisco, CA, USA.
Monica McLemoreDepartment of Child, Family, and Population Health Nursing, University of Washington, Seattle, WA, USA.
Elizabeth E RogersDepartment of Pediatrics, University of California San Francisco, San Francisco, CA, USA.

Funding

Transdisciplinary Research Training to Reduce Disparities in Preterm Birth and Improve Maternal and Neonatal OutcomesT32HD098057 · NICHD · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI KUPPERMANN, MIRIAM · 2019 to 2023
$1.4M
NICHD NIH HHS T32 HD098057UC | UC San Francisco | Department of Medicine, University of California, San Francisco (UCSF Department of Medicine) UCSF Clinical & Translational Science Institute (CTSI) Pilot Awards ProgramU.S. Department of Health & Human Services | NIH | Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) 5T32HD098057-04
6 · The paper itself

Abstract

objectivesTo understand local mechanisms of racial inequities and generate recommendations from community members regarding how to promote racial equity in the Neonatal Intensive Care Unit (NICU).

methodsIn an urban tertiary care NICU, 4 semi-structured in-person focus groups with follow-up audio diaries were conducted with NICU parents and staff from 2022-2023 with support from interpreters, a psychologist, and a family advocate. Researchers coded transcripts independently and thematic analysis was utilized to generate and refine themes.

results16 racially diverse and multidisciplinary staff and parents participated, and six themes emerged from the data. Mechanisms of racial inequities included power dynamics, interpersonal and institutional dehumanization, and societal inequities. Recommendations included redistributing power, transforming space and staff to promote humanism, and mitigating harm through peer support and resource allocation.

conclusionFocus groups are a promising strategy to identify interventions to address racial inequities. Future research should focus on intervention implementation and evaluation.

Indexed as

Healthcare DisparitiesIntensive Care Units, NeonatalParentsRacismAdultFemaleFocus GroupsHumansInfant, NewbornMaleQualitative Research

Identifiers

PMID39025956
PMCPMC11888985

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.