SynthesisQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2024
Understanding factors impacting patient-reported outcome measures integration in routine clinical practice: an umbrella review.
Synthesis in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 32 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
32 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Health-related quality of life domains relevant to people in Europe undergoing cancer treatment: a systematic review of qualitative research.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Pooled it
- Systematic Review of Artificial Intelligence Applications in Clinical Trials for Central Nervous System Injuries.Current neuropharmacology · 2026Pooled it
- Systematic review of the needs and health-related quality of life domains relevant to people surviving cancer in Europe.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Pooled it
- Trial
- Strengthening the patient perspective in quality development: a mixed-methods observational study on suitability of the PROMIS GH-10 in Swiss inpatient rehabilitation.BMC health services research · 2026Observational
- Using intersectionality to inform fit-for-purpose patient-reported outcome measure development: a qualitative interview study.Journal of patient-reported outcomes · 2026Article
- National scale up of PROM based monitoring after joint replacement in Germany.npj health systems · 2026Article
- Exploring perceptions of digital patient reported outcome measures: a multi-site qualitative case study in four European oncology outpatient clinics.Health and quality of life outcomes · 2026Article
- Opportunities and challenges in implementing digital patient-centred cancer care in Europe-a qualitative study of several ESMO Designated Centres.ESMO real world data and digital oncology · 2026Article
- Integrating Patient-Reported Outcomes into Clinical Pathways in Atrial Fibrillation: A Framework Aligned with the AF-CARE Model.Diagnostics (Basel, Switzerland) · 2026Article
- A generic and adaptable model of developing, implementing, and maintaining patient-reported outcomes in clinical practice - the AmbuFlex model.Journal of patient-reported outcomes · 2026Article
- Integrating real-time patient-reported outcomes in colorectal cancer care: development and evaluation of a concise clinical scorecard.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- Psychometric performance of the Patient-Reported Outcomes Measurement Information System-Physical Function and Oxford Shoulder Scores in total shoulder arthroplasty.JSES international · 2026Article
- BRIDGE implementation science study to improve chronic spontaneous urticaria outcomes in Italy.The journal of allergy and clinical immunology. Global · 2026Article
- Locked-Window EQ-5D-5L (Index and VAS) Benchmarking in Sarcoma Care: Rule-Based Traffic-Light Classification Across Two Institutions.Diseases (Basel, Switzerland) · 2026Article
- The Readability of Patient-Reported Measures in Early Psychosis.Schizophrenia bulletin · 2026Article
- Implementation of My Hearing PREM Into Three UK Audiology Services: A Pluralist Approach to Planning, Design and Evaluation.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- The PRO-CAR-T™ study: achieving excellence in patient and public involvement and engagement.Journal of patient-reported outcomes · 2026Article
- A Targeted Literature Review and Patient Focus Groups to Develop Recommendations for Reporting Patient-Reported Measures to Patients and Consumers in Clinical Quality Registries.Health services insights · 2026Article
- Development and validation of CORe-MBC: a pragmatic measure of participatory care for adults with metastatic breast cancer.Frontiers in oncology · 2026Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposePatient-report outcome measures (PROMs) have gained widespread support as a mechanism to improve healthcare quality. We aimed to map out key enablers and barriers influencing PROMs implementation strategies in routine clinical practice.
methodsAn umbrella review was conducted to identify reviews exploring enablers and barriers related to the integration of PROMs in routine clinical practice from January 2000 to June 2023. Information on key enablers and barriers was extracted and summarised thematically according to the Theoretical Domains Framework.
results34 reviews met our criteria for inclusion. Identified reviews highlighted barriers such as limited PROMs awareness among clinicians and patients, perceived low value by clinicians and patients, PROMs that were too complex or difficult for patients to complete, poor usability of PROMs systems, delayed feedback of PROMs data, clinician concerns related to use of PROMs as a performance management tool, patient concerns regarding privacy and security, and resource constraints. Enablers encompassed phased implementation, professional training, stakeholder engagement prior to implementation, clear strategies and goals, 'change champions' to support PROMs implementation, systems to respond to issues raised by PROMs, and integration into patient pathways. No consensus favoured paper or electronic PROMs, yet offering both options to mitigate digital literacy bias and integrating PROMs into electronic health records emerged as important facilitators.
conclusionsThe sustainable implementation of PROMs is a complex process that requires multicomponent organisational strategies covering training and guidance, necessary time and resources, roles and responsibilities, and consultation with patients and clinicians.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.