Evidence map›Paper›PMID 39017937›Full record

ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2024

A web-based knowledge database to provide evidence-based information to cancer patients: Utilization within the PIKKO study.

Nico Schneider, Uwe Altmann, Florian Brandt, Jutta Hübner, Bernhard Strauss, Christian Keinki

Abstract read
In one paragraph

Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 1 synthesis or guideline pooled it.

  1. Effectiveness of virtual delivery of cancer education for patients: a systematic review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Pooled it
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Nico SchneiderInstitute of Psychosocial Medicine, Psychotherapy and Psychooncology (IPMPP), Jena University Hospital, Stoystrasse 3, 07740, Jena, Germany. nico.schneider@med.uni-jena.de.ORCID http://orcid.org/0000-0002-7612-550X
Uwe AltmannInstitute of Psychosocial Medicine, Psychotherapy and Psychooncology (IPMPP), Jena University Hospital, Stoystrasse 3, 07740, Jena, Germany.ORCID http://orcid.org/0000-0002-3429-2895
Florian BrandtIKK Südwest, Europaallee 3-4, 66113, Saarbrücken, Germany.ORCID http://orcid.org/0000-0003-4947-1770
Jutta HübnerDepartment of Haematology and Medical Oncology, Jena University Hospital, Jena, Germany.ORCID http://orcid.org/0000-0003-4931-568X
Bernhard StraussInstitute of Psychosocial Medicine, Psychotherapy and Psychooncology (IPMPP), Jena University Hospital, Stoystrasse 3, 07740, Jena, Germany.ORCID http://orcid.org/0000-0001-5971-038X
Christian KeinkiThe German Cancer Society, Berlin, Germany.ORCID http://orcid.org/0000-0001-9569-7346

Funding

Innovation Fund of the Federal Joint Committee 01NVF17011
6 · The paper itself

Abstract

purposeCancer is associated with an urgent need for understandable and reliable information, which is often not satisfied by information available online. Therefore, as part of the PIKKO project, a web-based knowledge database (WDB) was introduced to provide cancer patients with quality-assured, evidence-based information. This paper aims to provide insights into the usage (Who? How? What?) and the effects regarding health literacy of the WDB.

methodsA patient survey and automatically generated logfile data were evaluated. Two user groups, patients and patient navigators (PNs), were compared.

resultsThe 13 PNs were responsible for 1/3 of all accesses over the entire duration of the project. The 413 patients used WDB twice on average and spent an average of 12 min per session online (PNs: 9 min per session, more frequently). The top 3 topics of interest were 'therapy', 'nutrition' and 'carcinogenesis' for the patients, and 'therapy', 'naturopathy' and 'legal regulations/support' for the PNs. Of the patients surveyed, 69% said that WDB was helpful in making informed decisions, 76% found the information they wanted and 90% thought WDB was an appropriate way to provide information.

conclusionOur WDB provided important information about cancer and its treatment on a digital way both, to patients and PNs. In routine cancer care, the WDB can improve health literacy and informed decision-making.

trial registrationThis study was retrospectively registered in the German Clinical Trial Register under DRKS00016703 (21 Feb 2019, retrospectively registered). https://www.drks.de/drks_web/navigate.do?navigationId=trial.HTML&TRIAL_ID=DRKS00016703.

Indexed as

Health LiteracyInternetNeoplasmsAdultAgedDatabases, FactualEvidence-Based MedicineFemaleHumansMaleMiddle AgedPatient Education as TopicSurveys and QuestionnairesCancere-healthHealth literacyInformationPatient navigatorQualityWebsite

Identifiers

PMID39017937
PMCPMC11254981

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.