Evidence map›Paper›PMID 39013649›Full record

ArticleBMJ open2024

Exploring subjective quality-of-life indicators in long-term care facilities: a mixed-methods research protocol.

Amanda A Nova, Anja Declercq, George A Heckman, John P Hirdes, Carrie McAiney, Jan De Lepeleire

Abstract read
In one paragraph

Article in BMJ open, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Amanda A NovaSchool of Public Health Sciences, University of Waterloo, Waterloo, Ontario, Canada aanova@uwaterloo.ca.ORCID 0000-0002-5064-079X
Anja DeclercqLUCAS Centre for Care Research and Consultancy, KU Leuven, Leuven, Belgium.
George A HeckmanSchool of Public Health Sciences, University of Waterloo, Waterloo, Ontario, Canada.ORCID 0000-0003-3847-3287
John P HirdesSchool of Public Health Sciences, University of Waterloo, Waterloo, Ontario, Canada.
Carrie McAineySchool of Public Health Sciences, University of Waterloo, Waterloo, Ontario, Canada.ORCID 0000-0002-7864-344X
Jan De LepeleireFaculty of Medicine, KU Leuven, Leuven, Belgium.ORCID 0000-0001-6152-2134

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionImproving quality of life has become a priority in the long-term care (LTC) sector internationally. With development and implementation guidance, standardised quality-of-life monitoring tools based on valid, self-report surveys could be used more effectively to benefit LTC residents, families and organisations. This research will explore the potential for subjective quality-of-life indicators in the interRAI Self-Reported Quality of Life Survey for Long-Term Care Facilities (QoL-LTCF). METHODS AND ANALYSIS: Guided by the Medical Research Council Framework, this research will entail a (1) modified Delphi study, (2) feasibility study and (3) realist synthesis. In study 1, we will evaluate the importance of statements and scales in the QoL-LTCF by administering Delphi surveys and focus groups to purposively recruited resident and family advisors, researchers, and LTC clinicians, staff, and leadership from international quality improvement organisations. In study 2, we will critically examine the feasibility and implications of risk-adjusting subjective quality-of-life indicators. Specifically, we will collect expert stakeholder perspectives with interviews and apply a risk-adjustment methodology to QoL-LTCF data. In study 3, we will iteratively review and synthesise literature, and consult with expert stakeholders to explore the implementation of quality-of-life indicators. ETHICS AND DISSEMINATION: This study has received approval through a University of Waterloo Research Ethics Board and the Social and Societal Ethics Committee of KU Leuven. We will disseminate our findings in conferences, journal article publications and presentations for a variety of stakeholders.

Indexed as

Delphi TechniqueFeasibility StudiesFocus GroupsLong-Term CareQuality of LifeResearch DesignHumansNursing HomesSelf ReportSurveys and QuestionnairesHealth ServicesHealth Services for the AgedImplementation SciencePatient Reported Outcome MeasuresQuality in health careQuality of Life

Identifiers

PMID39013649
PMCPMC11253758

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.