Evidence map›Paper›PMID 39013275›Full record

ArticleClinics (Sao Paulo, Brazil)2024

Translation to Portuguese and cross-cultural adaptation of the epilepsy transition readiness checklist for use in Brazil.

Daniela Fontes Bezerra, Rudá Alessi, Danielle Molinari Andrade, Rubens Wajnsztejn, Marco Akerman

Abstract read
In one paragraph

Article in Clinics (Sao Paulo, Brazil), 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

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0cells of the map it votes in
1citing papers in PubMed
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1 · What the graph read from it

What it found

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3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

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4 · The record

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5 · Who and what money

Authors and funding

5 authors.

Daniela Fontes BezerraNeurology Discipline, Faculdade de Medicina do ABC, Santo André, SP, Brazil. Electronic address: dradanybf@gmail.com.
Rudá AlessiNeurology Discipline, Faculdade de Medicina do ABC, Santo André, SP, Brazil.
Danielle Molinari AndradeAdult Genetic Epilepsy Program, Division of Neurology, Krembil Brain Institute, Toronto Western Hospital, University of Toronto, Toronto, Canada.
Rubens WajnsztejnNeurology Discipline, Faculdade de Medicina do ABC, Santo André, SP, Brazil.
Marco AkermanDepartment of Politics, Management and Health, Faculdade de Saúde Pública, Universidade de São Paulo, São Paulo, SP, Brazil.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesPlanning for the child and adolescent to have a safe handling in the epilepsy transition process is essential. In this work, the authors translated the "Readiness Checklists" and applied them to a group of patients and their respective caregivers in the transition process to assess the possibility of using them as a monitoring and instructional instrument.

methodsThe "Readiness Checklists" were applied to thirty adolescents with epilepsy and their caregivers. The original English version of this instrument underwent a process of translation and cultural adaptation by a translator with knowledge of English and epilepsy. Subsequently, it was carried out the back-translation and the Portuguese version was compared to the original, analyzing discrepancies, thus obtaining the final version for the Brazilian population.

resultsParticipants were able to answer the questions. In four questions there was an association between the teenagers' educational level and the response pattern to the questionnaires. The authors found a strong positive correlation between the responses of adolescents and caregivers (Rho

conclusionThe translation and application of the "Readiness Checklists" is feasible in Portuguese. Patients with lower educational levels felt less prepared for the transition than patients with higher educational levels, independently of age. Adolescents and caregivers showed similar perceptions regarding patients' abilities. The lists can be very useful tools to assess and plan the follow-up of the population of patients with epilepsy in the process of transition.

Indexed as

CaregiversChecklistCultural CharacteristicsEpilepsyTranslationsAdolescentBrazilChildCross-Cultural ComparisonEducational StatusFemaleHumansLanguageMaleReproducibility of ResultsSurveys and QuestionnairesChild epilepsyCross-cultural adaptationEpilepsyReadiness checklistTransitionTranslation

Identifiers

PMID39013275
PMCPMC11305199

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