Evidence map›Paper›PMID 39008127›Full record

ArticlePediatric surgery international2024

Are we informing our patients correctly? Evaluation of perioperative counselling for paediatric intestinal stoma formation: a national study.

Rebecca Roberts, Oliver Burdall, Claire Bohr, Hilary Kennard, Sophie Lewis, Lauren Harris, Eleri Cusick, National Stoma Study Research Collaborative

Abstract readMulticenter Study
PubMed Publisher
In one paragraph

Article in Pediatric surgery international, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Rebecca RobertsDepartment of Paediatric Surgery, Bristol Children's Hospital, Upper Maudlin Street, Bristol, BS2 8BJ, UK. rebecca.roberts72@nhs.net.
Oliver BurdallDepartment of Paediatric Surgery, Bristol Children's Hospital, Upper Maudlin Street, Bristol, BS2 8BJ, UK.
Claire BohrDepartment of Paediatric Surgery, Bristol Children's Hospital, Upper Maudlin Street, Bristol, BS2 8BJ, UK.
Hilary KennardDepartment of Paediatric Surgery, Bristol Children's Hospital, Upper Maudlin Street, Bristol, BS2 8BJ, UK.
Sophie LewisDepartment of Paediatric Surgery, Bristol Children's Hospital, Upper Maudlin Street, Bristol, BS2 8BJ, UK.
Lauren HarrisDepartment of Paediatric Surgery, Bristol Children's Hospital, Upper Maudlin Street, Bristol, BS2 8BJ, UK.
Eleri CusickDepartment of Paediatric Surgery, Bristol Children's Hospital, Upper Maudlin Street, Bristol, BS2 8BJ, UK.
National Stoma Study Research Collaborative

Funding

Specialist Stoma Nurse Research Prize supported by Opus Healthcare No ID
6 · The paper itself

Abstract

purposeAdequate preoperative information is known to improve patient outcomes. We aimed to evaluate perioperative education for paediatric patients and families undergoing intestinal stoma formation.

methodsUK paediatric surgery centres were invited to recruit patients aged 6-16 years with a stoma in situ or reversed within the last 2 years. Patient and parent questionnaires were posted for potential participants.

resultsEighty-three patient/parent dyads returned questionnaires. Median age was 11.5 years (range 4.1-17.8), with 48% (n = 40) formed electively. Parents rated how well-informed they felt perioperatively out of 10 (0 poorly, 10 highly informed). Parents were better informed about surgical issues and stoma care than psychological and social impacts (7.45 vs 6.11; p < 0.0001). 54% reported surgical complications but significantly fewer patients listed these amongst the worst things about having a stoma (24.4%) when compared with psychosocial issues: distress from bag leaks (90.8%; p < 0.0001), self-consciousness (54.1%; p = 0.0001), and restricted activity (40.2%; p = 0.03).

conclusionParents felt well-informed for medical and practical aspects but less well-informed of psychological and lifestyle impacts of having a stoma. Surgical complications were less important to patients than the impact on daily life. Increased psychosocial information would enable families to be better prepared for life with a stoma.

Indexed as

ParentsPatient Education as TopicSurgical StomasAdolescentChildChild, PreschoolCounselingFemaleHumansMaleSurveys and QuestionnairesUnited KingdomConsentExpectationsPatient educationStoma

Identifiers

PMID39008127

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.