Evidence map›Paper›PMID 39006521›Full record

ArticleNeuro-oncology practice2024

Inequalities in access to neuro-oncology supportive care and rehabilitation: A survey of healthcare professionals' perspectives.

Florien Boele, Lena Rosenlund, Sara Nordentoft, Sara Melhuish, Emma Nicklin, Isabelle Rydén, Aoife Williamson, Marike Donders-Kamphuis, Matthias Preusser, Emilie Le Rhun and 10 more

Abstract read
In one paragraph

Article in Neuro-oncology practice, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Mapping integrated care for brain tumour-related epilepsy in the Italian RIN-IRCCS network.Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology · 2026
    Article
  5. Article
  6. Article
  7. Defining the symptoms of personality and behaviour changes in brain tumour patients and their impact on caregivers.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025
    Article
  8. Article
  9. Review
  10. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

20 authors.

Florien BoeleLeeds Institute of Medical Research, St James's Hospital, University of Leeds, Leeds, UK.ORCID https://orcid.org/0000-0003-0409-7949
Lena RosenlundRegional Cancer Centre Stockholm-Gotland, Stockholm, Sweden.ORCID https://orcid.org/0000-0002-4700-2949
Sara NordentoftDepartment of Neurosurgery, Neurocentre, Copenhagen University Hospital, Rigshospitalet, Copenhagen, Denmark.ORCID https://orcid.org/0000-0001-5600-2644
Sara MelhuishSpeech and Language Therapy Department, St Bartholomew's Hospital, West Smithfield, London, UK.ORCID https://orcid.org/0000-0003-3758-0187
Emma NicklinLeeds Institute of Medical Research, St James's Hospital, University of Leeds, Leeds, UK.ORCID https://orcid.org/0000-0002-6683-8098
Isabelle RydénDepartment of Clinical Neuroscience, Institute of Neuroscience and Physiology, University of Gothenburg, Sahlgrenska Academy, Gothenburg, Sweden.ORCID https://orcid.org/0000-0002-2384-9248
Aoife WilliamsonBeatson West of Scotland Cancer Centre, Glasgow, UK.ORCID https://orcid.org/0009-0007-7443-6658
Marike Donders-KamphuisDepartment of Neurosurgery, Haaglanden Medisch Centrum, The Hague, The Netherlands.ORCID https://orcid.org/0000-0001-7067-2265
Matthias PreusserDivision of Oncology, Department of Medicine, Medical University, Vienna, Austria.ORCID https://orcid.org/0000-0003-3541-2315
Emilie Le RhunDepartment of Neurosurgery, Clinical Neuroscience Center, University Hospital and University of Zurich, Zurich, Switzerland.ORCID https://orcid.org/0000-0002-9408-3278
Barbara KieselDepartment of Neurosurgery, Medical University Vienna, Austria.
Giuseppe MinnitiDepartment of Radiological Sciences, Oncology and Anatomical Pathology & Sapienza University of Rome, Rome, Italy.ORCID https://orcid.org/0000-0003-1239-1603
Julia FurtnerFaculty of Medicine and Dentistry, Research Center for Medical Image Analysis and Artificial Intelligence (MIAAI), Danube Private University, Krems, Austria.ORCID https://orcid.org/0000-0001-8258-3681
Linda DirvenDepartment of Neurology, Leiden University Medical Center, Leiden, The Netherlands.ORCID https://orcid.org/0000-0001-9157-9895
Martin TaphoornDepartment of Neurology, Leiden University Medical Center, Leiden, The Netherlands.ORCID https://orcid.org/0000-0001-9949-4722
Norbert GalldiksDepartment of Radiological Sciences, Oncology and Anatomical Pathology & Sapienza University of Rome, Rome, Italy.ORCID https://orcid.org/0000-0002-2485-1796
Roberta RudàDivision of Neuro-Oncology, Department of Neuroscience, University of Turin, Turin, Italy.
Anthony ChalmersSchool of Cancer Sciences, University of Glasgow, UK.ORCID https://orcid.org/0000-0002-1746-7278
Susan C ShortLeeds Institute of Medical Research, University of Leeds, Leeds, UK.ORCID https://orcid.org/0000-0003-4423-7256
Karin PiilDepartment of Oncology, Centre for Cancer and Organ Diseases, Copenhagen University Hospital, Rigshospitalet, Copenhagen, Denmark.ORCID https://orcid.org/0000-0001-7972-4674

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Neuro-oncology patients and caregivers should have equitable access to rehabilitation, supportive-, and palliative care. To investigate existing issues and potential solutions, we surveyed neuro-oncology professionals to explore current barriers and facilitators to screening patients' needs and referral to services. Methods: Members of the European Association of Neuro-Oncology and the European Organisation for Research and Treatment of Cancer Brain Tumor Group (EORTC-BTG) were invited to complete a 39-item online questionnaire covering the availability of services, screening, and referral practice. Responses were analyzed descriptively; associations between sociodemographic/clinical variables and screening/referral practice were explored. Results: In total, 103 participants completed the survey (67% women and 57% medical doctors). Fifteen professions from 23 countries were represented. Various rehabilitation, supportive-, and palliative care services were available yet rated "inadequate" by 21-37% of participants. Most respondents with a clinical role ( Conclusions: Detecting and managing neuro-oncology patients' and caregivers' rehabilitation, supportive,- and palliative care needs can be improved. Better international collaboration can help address healthcare disparities.

Indexed as

brain tumordisparityinequalitiesrehabilitationsupportive/palliative care

Identifiers

PMID39006521
PMCPMC11241368

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.