Evidence map›Paper›PMID 38992599›Full record

ArticleBMC geriatrics2024

Acceptability and preliminary effects of the volunteer-supported Meaningful Moments program to engage older adults with advanced dementia on a hospital-based specialized dementia care unit: a mixed methods study.

Marie-Lee Yous, Esther Coker, Paulette V Hunter, Kathryn A Fisher, Joanna L Sue, Maria Nicula, Nadia Kazmie, Theresa Orsini, Tamara Sussman, Genevieve Thompson and 1 more

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Article in BMC geriatrics, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Marie-Lee YousSchool of Nursing, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada. yousm@mcmaster.ca.ORCID http://orcid.org/0000-0002-4271-0401
Esther CokerSchool of Nursing, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.ORCID http://orcid.org/0000-0002-2429-0271
Paulette V HunterDepartment of Psychology, St. Thomas More College, University of Saskatchewan, 1437 College Drive, Saskatoon, SK, S7N 0W6, Canada.ORCID http://orcid.org/0000-0003-1927-0433
Kathryn A FisherSchool of Nursing, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.ORCID http://orcid.org/0000-0001-8342-1238
Joanna L SueDepartment of Psychiatry and Behavioural Neurosciences, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.ORCID http://orcid.org/0000-0002-8147-6398
Maria NiculaHealth Research Methodology, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.ORCID http://orcid.org/0000-0003-2488-312X
Nadia KazmieSchool of Nursing, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.ORCID http://orcid.org/0000-0001-5510-0736
Theresa OrsiniSchool of Nursing, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.
Tamara SussmanSchool of Social Work, McGill University, 3506 University St, Montreal, QC, H3A 2A7, Canada.ORCID http://orcid.org/0000-0002-1226-6450
Genevieve ThompsonCollege of Nursing, University of Manitoba, 89 Curry Place (Fort Garry Campus), Winnipeg, MB, R3T 2N2, Canada.ORCID http://orcid.org/0000-0003-2558-9926
Sharon KaasalainenSchool of Nursing, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.ORCID http://orcid.org/0000-0003-2175-6037

Funding

Alzheimer Society 20006702CIHR 20006701
6 · The paper itself

Abstract

backgroundNamaste Care offers practical skills for healthcare providers, volunteers, and families to meaningfully engage individuals with dementia in activities (e.g., music, massage, reminiscing, socialization, aromatherapy, snacks). A hospital-based specialized dementia care unit for patients with mid- to late-stage dementia offered an adapted version of the Namaste Care program, which was called Meaningful Moments. The aim of this study was to assess the acceptability and preliminary effects of this novel approach using trained volunteers for older adults with mid- to late-stage dementia.

methodsA mixed methods multiphase design was used. Qualitative description was used to explore acceptability of the Meaningful Moments program delivered over 6 months through focus groups (e.g., charge nurses, therapeutic recreationists, nurses, social workers) and individual interviews with one volunteer and two family members. A prospective pre-post-test study design was used to evaluate the preliminary effects of the program for patients with dementia and family members. Outcomes included quality of life, neuropsychiatric symptoms, and pain for patients with dementia and family carer role stress and the quality of visits for families. Data were collected from June 2018 to April 2019. Descriptive analyses of participants' characteristics were expressed as a mean (standard deviation [SD]) for continuous variables and count (percent) for categorical variables. Focus group and individual interview data were analyzed using thematic analysis. The generalized estimating equations (GEE) method was used to assess change in the repeated measures outcome data.

resultsA total of 15 patients received the Meaningful Moments interventions. Families, staff, and volunteers perceived that patients experienced benefits from Meaningful Moments. Staff, volunteers, and families felt fulfilled in their role of engaging patients in the Meaningful Moments program. Individualized activities provided by volunteers were perceived as necessary for the patient population. There were no statistically significant improvements in patient outcomes. There was a statistically significant decline in family carer role stress.

conclusionsUsing a one-on-one approach by volunteers, patients experienced perceived benefits such as improved mood and opportunities for social interactions. There is a need for tailored activities for older adults with advanced dementia through practical strategies that can offer benefit to patients.

Indexed as

DementiaVolunteersAgedAged, 80 and overCaregiversFemaleHumansMaleMiddle AgedPatient Acceptance of Health CareProspective StudiesQuality of LifeDementiaEngagementFamilyHospital-based specialized dementia care unitOlder adultsPost-acute care settingQuality of life

Identifiers

PMID38992599
PMCPMC11238390

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.