Evidence map›Paper›PMID 38990166›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2024

A Qualitative Exploration of Stroke Survivors' Experiences of Using a Stroke Helpline.

Muneeba T Chaudhry, Alana B McCambridge, Esminio I I Rivera, Scott William, Peter Stubbs, Arianne Verhagen, Caleb Ferguson

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Making Room for Every Voice: Reimagining Person-Centred Care in the Neurosciences.Health expectations : an international journal of public participation in health care and health policy · 2025
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Muneeba T ChaudhryDiscipline of Physiotherapy, Graduate School of Health, University of Technology Sydney, Sydney, New South Wales, Australia.ORCID 0000-0001-6663-9905
Alana B McCambridgeDiscipline of Physiotherapy, Graduate School of Health, University of Technology Sydney, Sydney, New South Wales, Australia.ORCID 0000-0001-6822-4199
Esminio I I RiveraDiscipline of Physiotherapy, Graduate School of Health, University of Technology Sydney, Sydney, New South Wales, Australia.
Scott WilliamCentre for Chronic & Complex Care Research, School of Nursing, Blacktown Hospital, University of Wollongong & Western Sydney Local Health District, Sydney, New South Wales, Australia.
Peter StubbsDiscipline of Physiotherapy, Graduate School of Health, University of Technology Sydney, Sydney, New South Wales, Australia.ORCID 0000-0003-4555-8019
Arianne VerhagenDiscipline of Physiotherapy, Graduate School of Health, University of Technology Sydney, Sydney, New South Wales, Australia.ORCID 0000-0002-6195-0128
Caleb FergusonCentre for Chronic & Complex Care Research, School of Nursing, Blacktown Hospital, University of Wollongong & Western Sydney Local Health District, Sydney, New South Wales, Australia.ORCID 0000-0002-2417-2216

Funding

CF is supported by an NHMRC Emerging Leader Fellowship (2020-2025 Ref APP1196262).
6 · The paper itself

Abstract

backgroundStrokeLine is a stroke-specific helpline used by stroke survivors and their families in Australia to access professional support. There has been little research exploring stroke survivors' experiences of using helplines and their perceived impact on their stroke recovery.

aimThe aim of this study is to explore the reasons prompting stroke survivors to call StrokeLine and their experiences and to describe the perceived impact of calling StrokeLine on their recovery.

methodsAn exploratory descriptive qualitative study was undertaken using thematic analysis of data collected through semi-structured interviews of stroke survivors between December 2020 and May 2022. Participants were recruited using purposive sampling. Interviews were conducted via audio-recorded Zoom conference calling and transcribed verbatim for thematic analysis.

resultsA total of eight callers (four men and women women) participated, with the time since stroke ranging from 3.5 months to 5 years. Four major themes were identified, including 17 sub-themes. Key themes included (1) factors prompting use of StrokeLine; (2) experience of using StrokeLine; (3) perceived impact of using StrokeLine; and (4) conceptualising StrokeLine service provision.

conclusionsParticipants perceived their experience of contacting StrokeLine as having a positive impact on their stroke recovery, leaving them feeling empowered and motivated to self-manage their condition. PATIENT OR PUBLIC CONTRIBUTION: Stroke survivors with lived experience influenced the conceptualisation of this study through conversations with consumers and the Stroke Foundation. Eight stroke survivors were involved as participants in the research study.

Indexed as

HotlinesQualitative ResearchStrokeSurvivorsAdultAgedAged, 80 and overAustraliaFemaleHumansInterviews as TopicMaleMiddle Agedhelplineself‐careself‐managementstroketelehealthtransitional care

Identifiers

PMID38990166
PMCPMC11238573

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.