ArticleBMC pediatrics2024
Autism spectrum: parents' perspectives reflecting the different needs of different families.
Article in BMC pediatrics, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 7 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
7 citing papers in PubMed.
- Development of an Integrated Developmental Model for Adaptation with Autistic Children in Family System.Journal of autism and developmental disorders · 2026Article
- "What My Son Needs Is Me. What I Need Is... Guidance": Caregiver Perspectives About Early Autism Supports Amid Changing Attitudes and Policies.Journal of autism and developmental disorders · 2026Article
- Faith, stigma, and resilience: a qualitative study of the experiences of mothers raising children with autism spectrum disorder in West Azerbaijan, Iran.BMC psychology · 2026Article
- Navigating fragmented and contingent support: A qualitative study of British Armed Forces families raising neurodivergent children.PloS one · 2026Article
- An examination of the hopelessness levels and self-esteem of parents with special needs children.BMC psychology · 2025Article
- An integrative approach between neurodiversity perspectives and quality of life models for autistic people across the spectrum of support needs.Frontiers in psychiatry · 2025Review
- Correction: Autism spectrum: parents' perspectives reflecting the different needs of different families.BMC pediatrics · 2024Article
Corrections and comments
- Erratum issued
Authors and funding
4 authors.
Funding
Abstract
backgroundParents of children on the autism spectrum often face great challenges in the care of their child. Early support tailored to families' individual needs is therefore crucial for the development and quality of life of both children on the autism spectrum and their families. However, to date it is unclear whether the support available meets the parents' needs. STUDY
aimTo investigate how the system of care, support, and therapies for children on the autism spectrum is perceived by their parents.
methodA total of 57 parents of Swiss children on the autism spectrum participated in an online survey, and 20 of them participated in additional semi-structured interviews.
resultsWe found that parents of children on the autism spectrum may face substantial challenges and that social support is essential. Two thirds of the participating parents reported a long and difficult diagnostic process as challenging, and 60% expressed their need for closer follow-up after diagnosis and more support. Only one third of the parents stated that they manage their everyday lives well, whereas 17.5% felt exhausted, and more than half of the parents responded that they felt challenged. One fifth indicated that they had poor family support, and half reported substantial financial challenges. At the same time, most families also emphasize how important their neurodivergent children are to the family`s life together.
conclusionIt is important that primary pediatricians not only initiate the diagnostic process, but also assess the different needs of the different family independent of the diagnosis and, if necessary, initiate adequate measures or guide parents to institutions in charge. Parents who do not actively express their individual needs should nevertheless be advised about support services, including financial counseling. The positive aspects mentioned by families can be emphasized and used as resources to improve their quality of life.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.