Evidence map›Paper›PMID 38981117›Full record

ArticleJournal of the American Medical Informatics Association : JAMIA2024

Research to classrooms: a co-designed curriculum brings All of Us data to secondary schools.

Louisa A Stark, Kristin E Fenker, Harini Krishnan, Molly Malone, Rebecca J Peterson, Regina Cowan, Jeremy Ensrud, Hector Gamboa, Crstina Gayed, Patricia Refino and 4 more

Abstract read
In one paragraph

Article in Journal of the American Medical Informatics Association : JAMIA, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Research for all: building a diverse researcher community for the All of Us Research Program.Journal of the American Medical Informatics Association : JAMIA · 2025
    Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors.

Louisa A StarkGenetic Science Learning Center, Department of Human Genetics, University of Utah, Salt Lake City, UT 84112, United States.ORCID 0000-0002-2978-7279
Kristin E FenkerGenetic Science Learning Center, Department of Human Genetics, University of Utah, Salt Lake City, UT 84112, United States.
Harini KrishnanGenetic Science Learning Center, Department of Human Genetics, University of Utah, Salt Lake City, UT 84112, United States.
Molly MaloneGenetic Science Learning Center, Department of Human Genetics, University of Utah, Salt Lake City, UT 84112, United States.
Rebecca J PetersonGenetic Science Learning Center, Department of Human Genetics, University of Utah, Salt Lake City, UT 84112, United States.
Regina CowanScience Department, Mojave High School, North Las Vegas, NV 89031, United States.
Jeremy EnsrudScience Department, Canby High School, Canby, OR 97013, United States.
Hector GamboaScience Department, West Middle School, Bay Shore, NY 11706, United States.
Crstina GayedScience Department, Technology High School, Paramus, NJ 07652, United States.
Patricia RefinoScience Department, East Rockaway High School, East Rockaway, NY 11518, United States.
Tia TolkScience Department, Lincoln High School, Sioux Falls, SD 57105, United States.
Teresa WaltersScience Department, Loup City High School, Loup City, NE 68853, United States.
Yong CrosbyDivision of Engagement and Outreach, All of Us Research Program, National Institutes of Health, Bethesda, MD 20817, United States.
Rubin BaskirDivision of Engagement and Outreach, All of Us Research Program, National Institutes of Health, Bethesda, MD 20817, United States.

Funding

University of Arizona-Banner Health All of Us Research Program OT2OD026549 · OD · UNIVERSITY OF ARIZONA · PI MORENO, FRANCISCO A, REIMAN, ERIC MICHAEL · 2018 to 2023
$78.9M
California Precision Medicine Research Program ConsortiumOT2OD026552 · OD · UNIVERSITY OF CALIFORNIA, SAN DIEGO · PI ANTON-CULVER, HODA A, OHNO-MACHADO, LUCILA · 2018 to 2023
$73.4M
All of Us PennsylvaniaOT2OD026554 · OD · UNIVERSITY OF PITTSBURGH AT PITTSBURGH · PI REIS, STEVEN E, VISWESWARAN, SHYAM · 2018 to 2023
$72.1M
New York City Consortium for Precision MedicineOT2OD026556 · OD · COLUMBIA UNIVERSITY HEALTH SCIENCES · PI BIER, LOUISE E, GHARAVI, ALI G · 2018 to 2023
$67.3M
SouthEast Enrollment Center (SEEC) OT2OD026551 · OD · UNIVERSITY OF MIAMI SCHOOL OF MEDICINE · PI CARRASQUILLO, OLVEEN, COLON, VIVIAN · 2018 to 2023
$62.8M
Southern All of Us NetworkOT2OD026548 · OD · UNIVERSITY OF ALABAMA AT BIRMINGHAM · PI FOUAD, MONA N., KORF, BRUCE R · 2018 to 2023
$60.5M
Illinois Precision Medicine Consortium OT2OD026557 · OD · NORTHWESTERN UNIVERSITY AT CHICAGO · PI AHSAN, HABIBUL, ARGOS, MARIA · 2018 to 2023
$60.5M
The New England Precision Medicine Consortium of the All of Us Research ProgramOT2OD026553 · OD · MASSACHUSETTS GENERAL HOSPITAL · PI CLARK, CHERYL RENEE, KARLSON, ELIZABETH W · 2018 to 2023
$58.8M
Trans-America Consortium of the Health Care Systems Research Network for the All of Us Research ProgramOT2OD026550 · OD · HENRY FORD HEALTH SYSTEM · PI AHMEDANI, BRIAN KENNETH, JOHNSON, CHRISTINE C · 2018 to 2022
$57.3M
All of Us Wisconsin OT2OD026555 · OD · MARSHFIELD CLINIC RESEARCH FOUNDATION · PI BURNSIDE, ELIZABETH S, EDWARDS, DOROTHY FARRAR · 2018 to 2023
$57.2M
Engaging All of Us for Effective Precision MedicineOT2OD028414 · OD · UNIVERSITY OF UTAH · PI STARK, LOUISA A · 2019 to 2023
$9.4M
Federally Qualified Health Centers HHSN 263201600085UHHSNIHNIH HHS OT2 OD026548NIH HHS OT2 OD026549NIH HHS OT2 OD026550NIH HHS OT2 OD026551NIH HHS OT2 OD026552NIH HHS OT2 OD026553NIH HHS OT2 OD026554NIH HHS OT2 OD026555NIH HHS OT2 OD026556NIH HHS OT2 OD026557NIH HHS OT2 OD 028414NIH HHS OT2 OD028414Office of the Director: Regional Medical Centers 1 OT2 OD026549
6 · The paper itself

Abstract

objectivesWe describe new curriculum materials for engaging secondary school students in exploring the "big data" in the NIH All of Us Research Program's Public Data Browser and the co-design processes used to collaboratively develop the materials. We also describe the methods used to develop and validate assessment items for studying the efficacy of the materials for student learning as well as preliminary findings from these studies. MATERIALS AND

methodsSecondary-level biology teachers from across the United States participated in a 2.5-day Co-design Summer Institute. After learning about the All of Us Research Program and its Data Browser, they collaboratively developed learning objectives and initial ideas for learning experiences related to exploring the Data Browser and big data. The Genetic Science Learning Center team at the University of Utah further developed the educators' ideas. Additional teachers and their students participated in classroom pilot studies to validate a 22-item instrument that assesses students' knowledge. Educators completed surveys about the materials and their experiences.

resultsThe "Exploring Big Data with the All of Us Data Browser" curriculum module includes 3 data exploration guides that engage students in using the Data Browser, 3 related multimedia pieces, and teacher support materials. Pilot testing showed substantial growth in students' understanding of key big data concepts and research applications. DISCUSSION AND

conclusionOur co-design process provides a model for educator engagement. The new curriculum module serves as a model for introducing secondary students to big data and precision medicine research by exploring diverse real-world datasets.

Indexed as

CurriculumSchoolsAdolescentBig DataHumansUnited Statesbig datacurriculumeducationeducational assessmentNIH All of Us Research Program

Identifiers

PMID38981117
PMCPMC11631122

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.