Evidence map›Paper›PMID 38977367›Full record

ArticleBMJ open2024

Access to personalised dementia care planning in primary care: a mixed methods evaluation of the PriDem intervention.

Emily Spencer, Sarah Griffiths, Katie Flanagan, Aidan O'Keeffe, Martin Wiegand, Lewis Benjamin, Federica D'Andrea, Jane Wilcock, Marie Poole, Kate R Walters and 3 more

Abstract readMulticenter Study
In one paragraph

Article in BMJ open, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Trial
  4. Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Emily SpencerPrimary Care and Population Health, UCL, London, UK.
Sarah GriffithsPrimary Care and Population Health, UCL, London, UK s.a.griffiths@ucl.ac.uk.ORCID 0000-0002-2652-3163
Katie FlanaganPrimary Care and Population Health, UCL, London, UK.
Aidan O'KeeffeMathematical Sciences, University of Nottingham, Nottingham, UK.
Martin WiegandBiostatistics Unit, UCL, London, UK.ORCID 0000-0003-0276-658X
Lewis BenjaminPrimary Care and Population Health, UCL, London, UK.
Federica D'AndreaUniversity of West London, London, UK.
Jane WilcockPrimary Care and Population Health, UCL, London, UK.
Marie PooleNewcastle University, Newcastle upon Tyne, UK.
Kate R WaltersPrimary Care and Population Health, UCL, London, UK.ORCID 0000-0003-2173-2430
Louise RobinsonNewcastle University, Newcastle upon Tyne, UK.ORCID 0000-0003-0209-2503
Greta RaitPrimary Care and Population Health, UCL, London, UK.
PriDem research team

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesProvision of personalised care planning is a national priority for people with dementia. Research suggests a lack of quality and consistency of care plans and reviews. The PriDem model of care was developed to deliver feasible and acceptable primary care-based postdiagnostic dementia care. We aimed to increase the adoption of personalised care planning for people with dementia, exploring implementation facilitators and barriers.

designMixed-method feasibility and implementation study.

settingSeven general practices from four primary care networks (PCNs) in the Northeast and Southeast of England.

participantsA medical records audit collected data on 179 community-dwelling people with dementia preintervention, and 215 during the intervention year. The qualitative study recruited 26 health and social care professionals, 14 people with dementia and 16 carers linked to participating practices.

interventionClinical dementia leads (CDL) delivered a 12-month, systems-level intervention in participating PCNs, to develop care systems, build staff capacity and capability, and deliver tailored care and support to people with dementia and their carers. PRIMARY AND SECONDARY OUTCOME MEASURES: Adoption of personalised care planning was assessed through a preintervention and postintervention audit of medical records. Implementation barriers and facilitators were explored through semistructured qualitative interviews and non-participant observation, analysed using codebook thematic analysis informed by Normalisation Process Theory.

resultsThe proportion of personalised care plans increased from 37.4% (95% CI 30.3% to 44.5%) preintervention to 64.7% (95% CI 58.3% to 71.0%) in the intervention year. Qualitative findings suggest that the flexible nature of the PriDem intervention enabled staff to overcome contextual barriers through harnessing the skills of the wider multidisciplinary team, delivering increasingly holistic care to patients.

conclusionsMeaningful personalised care planning can be achieved through a team-based approach. Although improved guidelines for care planning are required, commissioners should consider the benefits of a CDL-led approach. TRIAL REGISTRATION NUMBER: ISRCTN11677384.

Indexed as

DementiaFeasibility StudiesPatient Care PlanningPrimary Health CareQualitative ResearchAgedAged, 80 and overCaregiversEnglandFemaleHealth Services AccessibilityHumansMaleMiddle AgedPrecision MedicineDementiaPatient-Centered CarePrimary Health Care

Identifiers

PMID38977367
PMCPMC11256029

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.