Evidence map›Paper›PMID 38976887›Full record

ReviewThe journal of spinal cord medicine2025

Priorities and opportunities for advocacy in SCI: An international web-based review.

Vyshnavi Manohara, Anna Nuechterlein, Tanya A Barretto, Judy Illes

Abstract readReview
In one paragraph

Review in The journal of spinal cord medicine, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Vyshnavi ManoharaNeuroethics Canada, Division of Neurology, Department of Medicine, University of British Columbia, Vancouver, Canada.
Anna NuechterleinNeuroethics Canada, Division of Neurology, Department of Medicine, University of British Columbia, Vancouver, Canada.
Tanya A BarrettoNeuroethics Canada, Division of Neurology, Department of Medicine, University of British Columbia, Vancouver, Canada.
Judy IllesNeuroethics Canada, Division of Neurology, Department of Medicine, University of British Columbia, Vancouver, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

contextFor the growing number of people with spinal cord injuries worldwide, advocacy organizations are an invaluable resource of information and education during recovery and rehabilitation.

objectiveTo examine the structure, information, and accessibility of websites from international organizations that serve and advocate for individuals with SCI.

methodsWe performed a content analysis of information available from SCI organizations returned from a Google search. We used search terms relevant to SCI and advocacy and applied them to top-level domains for the G20 countries. Organizations that provide services or advocate for people with SCI with English-language websites were included; organizations focused on research, fundraising, clinical care, interprofessional knowledge exchange, or other neurological conditions were excluded. Accessibility, in terms of ease of use to information about participation, was assessed using a 3-point scale.

resultsWe identified SCI organizations from 27 different countries across six regions: Africa (

conclusionThe SCI organizations identified in this study offer resources that largely pertain to education and physical health services and strategies. Information about clinical trials and SCI research studies are easily accessible on the websites of the limited number of organizations offering avenues for participation.

Indexed as

InternetPatient AdvocacySpinal Cord InjuriesHumansAdvocacyCommunity integrationInternationalSpinal cord injury

Identifiers

PMID38976887
PMCPMC12035959

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.