ReviewAlzheimer's & dementia : the journal of the Alzheimer's Association2024
Caregiver coping mediates the relationship between caregivers' understanding of dementia as terminal and their distress.
Review in Alzheimer's & dementia : the journal of the Alzheimer's Association, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
6 citing papers in PubMed.
- 'I do Things that I don't Really Want to do …': Understanding the Everyday Lives of Family Carers of People With Dementia.Dementia (London, England) · 2026Article
- Supporting Dementia Caregiving With a Mobile Care Ecosystem: Development and Mixed Methods Study.JMIR aging · 2025Article
- A qualitative study on the subjective experience of prolonged care among family members of patients with moderate to severe dementia.BMC palliative care · 2025Article
- Development, Implementation, and Outcomes of Web-Based Interventions for Family Caregivers of Individuals with Dementia: A Scoping Review.Risk management and healthcare policy · 2025Review
- Caregiver coping mediates the relationship between caregivers' understanding of dementia as terminal and their distress.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2024Review
- Relationship between caregiver characteristics and the reported quality of life of people with mild and moderate dementia.Revista CuidarteArticle
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
We assessed which coping strategies (problem-focused, emotion-focused, dysfunctional) mediate the association between caregivers' understanding of dementia as terminal and their distress. A total of 215 caregivers of community-dwelling persons with severe dementia were surveyed every 4 months over 3 years. A generalized structural equation model was used to test mediation. Caregivers who correctly understood dementia as terminal and those unsure (vs incorrect), experienced more distress (correct: β [95% confidence interval (CI)]: 0.80 [0.00 to 1.60]; unsure: 0.95 [0.04 to 1.87]). Caregivers with correct understanding of dementia as terminal (vs incorrect) employed more dysfunctional (2.01 [0.60 to 3.42]) and problem-focused coping strategies (2.56 [0.08 to 5.05]). Although dysfunctional and problem-focused coping (associated with higher distress) mediated the positive association between caregivers' understanding that dementia is terminal and their distress, emotion-focused coping (associated with lower distress) did not offset this relationship. Results suggest that terminal illness disclosure to caregivers should be accompanied by interventions to promote emotion-focused coping strategies. Highlights Caregivers who understood dementia as terminal experienced more distress. Dysfunctional and problem-focused coping mediated the positive relationship between terminal illness understanding and caregiver distress. Emotion-focused coping did not offset this relationship.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.