Evidence map›Paper›PMID 38967870›Full record

ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2024

Measuring what matters to older persons for active living: part I content development for the OPAL measure across four countries.

Nancy E Mayo, Mohammad Auais, Ruth Barclay, Joan Branin, Helen Dawes, Ida J Korfage, Kim Sawchuk, Eran Tal, Carole L White, Zain Ayoubi and 7 more

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Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

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5 · Who and what money

Authors and funding

17 authors.

Nancy E MayoDivisions of Clinical Epidemiology, Geriatrics, Experimental Medicine, Department of Medicine School of Physical and Occupational Therapy, Center for Outcomes Research and Evaluation (CORE), McGill University Health Center (MUHC), MUHC-Research Institute, McGill University, 5252 de Maisonneuve, Montreal, QC, H4A 3S5, Canada. nancy.mayo@mcgill.ca.ORCID http://orcid.org/0000-0003-2066-7120
Mohammad AuaisThe Rehabilitation and Health Leadership Program, School of Rehabilitation Therapy, Queen's University, Kingston, ON, Canada.
Ruth BarclayDepartment of Physical Therapy, College of Rehabilitation Sciences, Rady Faculty of Health Sciences, University of Manitoba, R106-771 McDermot Ave, Winnipeg, MB, R3E 0T6, Canada.
Joan BraninCenter for Health and Aging, Pasadena, CA, 91106, USA.
Helen DawesDepartment of Public Health & Sports Sciences, Faculty of Health and Life Sciences, College of Medicine and Health, University of Exeter, University of Exeter Medical School, Medical School Building, St Lukes Campus, Heavitree Road, Exeter, EX12LU, England.
Ida J KorfageDepartment of Public Health, Erasmus MC University Medical Center Rotterdam, 3000 CA, PO Box 2040, Rotterdam, The Netherlands.
Kim SawchukCommunication Studies, Concordia University, Montreal, QC, Canada.
Eran TalDepartment of Philosophy, McGill University, Leacock Building, Room 933, Montreal, Canada.
Carole L WhiteSchool of Nursing, UT Health San Antonio, San Antonio, USA.
Zain AyoubiCenter for Outcomes Research and Evaluation (CORE), Research Institute of McGill University Health Center, Montreal, Canada.
Fariha ChowdhurySchool of Rehabilitation Science, McMaster University, Hamilton, Canada.
Julia HendersonOccupational Science & Occupational Therapy, T325 - 2211 Wesbrook Mall, Vancouver, BC, V6T 2B5, Canada.
Mae MansoubiDigital Health Innovation and Public Health, Co-Module Lead Rehabilitation Science CSC3021, Medical School, University of Exeter, Exeter, UK.
Kedar K V MateFaculty of Medicine and Health Sciences, McGill University, Montreal, Canada.
Lyne NadeaCenter for Outcomes Research and Evaluation (CORE), Research Institute of McGill University Health Center, Montreal, Canada.
Sebastian RodriguezDepartment of Philosophy, McGill University, Leacock Building, Room 933, Montreal, Canada.
Ayse KuspinarSchool of Rehabilitation Science, McMaster University, 1400 Main Street West, Hamilton, ON, L8S 1C7, Canada.

Funding

CIHR (PJT-173538 ).
6 · The paper itself

Abstract

aimsMany older persons do not think of themselves as "patients" but as persons wishing to live as actively as possible for as long as possible. However, most health-related quality of life (HRQL) measures were developed for use with clinical populations. The aim of this project was to fill that gap and to develop, for international use, a measure of what matters to older persons as they age and seek to remain as active as possible, Older Persons for Active Living (OPAL).

methodsFor content development, interviews about active living were conducted with older persons from Canada, USA, UK, and the Netherlands in English, French, Spanish and Dutch, respectively with subsequent thematic analysis and harmonization.

resultsAnalyses of transcripts from 148 older persons revealed that active living was a "way of being" and not merely doing activities. Saturation was reached and a total of 59 content areas were identified. After grouping similar "ways" together and after conducting a consensus rating of importance, 19 unique and important "ways" remained. In some languages, formulating was challenging for three of the 19, resulting in changes to two English words and dropping two other words, yielding a final list of 17 "ways of being" with harmonized wording in 4 languages.

conclusionThis study underscores the significance of listening to older adults and highlights the importance of considering linguistic and cultural nuances in measure development.

Indexed as

Activities of Daily LivingQuality of LifeAgedAged, 80 and overCanadaFemaleHumansInterviews as TopicMaleMiddle AgedNetherlandsPsychometricsQualitative ResearchSurveys and QuestionnairesUnited KingdomUnited StatesActive agingCommunity programsQualitative methodsQuality of lifeTranslation

Identifiers

PMID38967870

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.