ArticleHealth expectations : an international journal of public participation in health care and health policy2024
Partnered Recruitment: Engaging Individuals With Lived Experience in the Recruitment of Co-Design Participants.
Article in Health expectations : an international journal of public participation in health care and health policy, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
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Who cites it
7 citing papers in PubMed.
- The effect of a primary care intervention on diabetes distress in individuals with newly diagnosed type 2 diabetes: a cluster-randomized controlled trial.BMC primary care · 2026Trial
- Partnering with people with lived experience in eating disorder research: conceptual and practical considerations.Journal of eating disorders · 2026Article
- "To make a positive difference": diverse youth perspectives on getting involved in mental health research.Research involvement and engagement · 2026Article
- The Early Movers Clinician's Guide: Co-Designing a Resource for the 24-Hour Movement Guidelines in Paediatric Occupational Therapy.Child: care, health and development · 2026Article
- Operationalising Patient Engagement Through the Alberta Cancer Diagnosis Initiative: Recruitment Strategies for Diverse Populations in Health System Improvement.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Patient Engagement in Integrated Care: What Matters and Why?Health expectations : an international journal of public participation in health care and health policy · 2025Article
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Authors and funding
12 authors.
Funding
Abstract
backgroundYoung adults with type 1 diabetes (T1D) face complex health challenges, including a heightened risk for distress. To counter this distress, there is a need to develop accessible, acceptable comprehensive care solutions that integrate diabetes and mental health care to enhance self-efficacy and counter mental health challenges in this population.
objectiveTo describe the engagement of individuals with lived experience of T1D and mental health challenges in the development of a recruitment strategy to support the co-design of an innovative integrated care programme.
resultsSeven individuals with lived experience formed a Partner Advisory Council (PAC) to recruit young adults (18-29 years old) living with T1D, their friends or family and health researchers and professionals in co-design interviews (n = 19) and co-design events (n = 12). The PAC played a key role in developing a comprehensive recruitment strategy, overcoming traditional barriers and stigmas in the design of an integrated model of care.
conclusionAssuming the presence of mental health challenges in young adults living with T1D during recruitment had far-reaching impacts on the development of a whole-person and integrated diabetes and mental health care solution. The efficient recruitment of this sample provided invaluable insights into the nuanced challenges experienced by young adults with T1D, the individual skills developed in response to their mental health challenges and the ways that this understanding can shape future programming to support mental health, quality of life and well-being. The ongoing involvement of the PAC as co-researchers underscores the enduring impact of patient engagement in developing integrated care solutions. PATIENT OR PUBLIC CONTRIBUTION: The co-design of the TECC-T1D3 model was enriched by the invaluable contributions of individuals with lived experience. This included the engagement of a diverse PAC in the recruitment of participants in co-design interviews and co-design events. PAC members actively participated in research decision-making with their insights informing a robust recruitment strategy. Beyond recruitment, PAC members continue to serve as co-researchers, shaping ongoing research and actively contributing to the TECC-T1D3 project. Six PAC members are co-authors on this manuscript.
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