Evidence map›Paper›PMID 38958899›Full record

ArticleMedicine, health care, and philosophy2024

Learning from disability studies to introduce the role of the individual to naturalistic accounts of disease.

Ozan Altan Altinok

Abstract read
In one paragraph

Article in Medicine, health care, and philosophy, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

What it found

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2 · The registry

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3 · Its place in the literature

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0 citing papers in PubMed.

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4 · The record

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5 · Who and what money

Authors and funding

1 author.

Ozan Altan AltinokCenter for Ethics and Law in the Life Sciences, Leibniz University of Hannover, Otto - Brener Straße 1, Hannover, Germany. ozanaltanaltinok@gmail.com.ORCID http://orcid.org/0000-0003-2239-3258

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Disability studies have been successfully focusing on individuals' lived experiences, the personalization of goals, and the constitution of the individual in defining disease and restructuring public understandings of disability. Although they had a strong influence in the policy making and medical modeling of disease, their framework has not been translated to traditional naturalistic accounts of disease. I will argue that, using new developments in evolutionary biology (Extended Evolutionary Synthesis [EES] about questions of proper function) and behavioral ecology (Niche conformance and construction about the questions of reference classes in biostatistics accounts), the main elements of the framework of disability studies can be used to represent life histories at the conceptual level of the two main "non-normative" accounts of disease. I chose these accounts since they are related to medicine in a more descriptive way. The success of the practical aspects of disability studies this way will be communicated without causing injustice to the individual since they will represent the individuality of the patient in two main naturalistic accounts of disease: the biostatistical account and the evolutionary functional account. Although most accounts criticizing the concept of disease as value-laden do not supply a positive element, disability studies can supply a good point for descriptive extension of the concept through inclusion of epistemic agency.

Indexed as

Persons with DisabilitiesBiological EvolutionBiostatisticsDiseaseHumansPhilosophy, MedicalDisability studiesEvolutionary medicineExtended evolutionary synthesisNiche constructionPatient autonomy

Identifiers

PMID38958899
PMCPMC11310279

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.