ArticleBMC psychiatry2024
Experiences from patients in mental healthcare accessing their electronic health records: results from a cross-national survey in Estonia, Finland, Norway, and Sweden.
Article in BMC psychiatry, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
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Who cites it
8 citing papers in PubMed.
- Understanding Patient-Reported Offenses in Electronic Health Records: Cross-Sectional Mixed Methods Survey.Journal of medical Internet research · 2026Article
- Safeguarding patient privacy in eHealth systems: Bridging theory and practice through a scoping review and healthcare survey.PLOS digital health · 2026Article
- Digital health engagement among urological patients in four European countries: findings from an international cross-sectional survey by the European Association of Urology Section of Outpatient and Office Urology.Central European journal of urology · 2026Article
- Open Notes in Mental Health: A Scoping Review of Stakeholder Experiences and Implications for Clinical Practice.Healthcare (Basel, Switzerland) · 2025Review
- Prevalence and types of errors in the electronic health record: protocol for a mixed systematic review.BMJ open · 2025Article
- Guideline adherence in depression outcome measurement: a retrospective cohort study from Swedish psychiatric outpatient care.Frontiers in psychiatry · 2025Article
- What do patients consider sensitive health information? A cross-sectional survey of national patient portal users.Digital healthArticle
- What matters in digital health technology adoption for mental healthcare? - A multistakeholder qualitative study.Digital healthArticle
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Authors and funding
19 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPatients' online record access (ORA) enables patients to read and use their health data through online digital solutions. One such solution, patient-accessible electronic health records (PAEHRs) have been implemented in Estonia, Finland, Norway, and Sweden. While accumulated research has pointed to many potential benefits of ORA, its application in mental healthcare (MHC) continues to be contested. The present study aimed to describe MHC users' overall experiences with national PAEHR services.
methodsThe study analysed the MHC-part of the NORDeHEALTH 2022 Patient Survey, a large-scale multi-country survey. The survey consisted of 45 questions, including demographic variables and questions related to users' experiences with ORA. We focused on the questions concerning positive experiences (benefits), negative experiences (errors, omissions, offence), and breaches of security and privacy. Participants were included in this analysis if they reported receiving mental healthcare within the past two years. Descriptive statistics were used to summarise data, and percentages were calculated on available data.
results6,157 respondents were included. In line with previous research, almost half (45%) reported very positive experiences with ORA. A majority in each country also reported improved trust (at least 69%) and communication (at least 71%) with healthcare providers. One-third (29.5%) reported very negative experiences with ORA. In total, half of the respondents (47.9%) found errors and a third (35.5%) found omissions in their medical documentation. One-third (34.8%) of all respondents also reported being offended by the content. When errors or omissions were identified, about half (46.5%) reported that they took no action. There seems to be differences in how patients experience errors, omissions, and missing information between the countries. A small proportion reported instances where family or others demanded access to their records (3.1%), and about one in ten (10.7%) noted that unauthorised individuals had seen their health information.
conclusionsOverall, MHC patients reported more positive experiences than negative, but a large portion of respondents reported problems with the content of the PAEHR. Further research on best practice in implementation of ORA in MHC is therefore needed, to ensure that all patients may reap the benefits while limiting potential negative consequences.
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