ArticleEuropean journal of public health2024
PHIRI: lessons for an extensive reuse of sensitive data in federated health research.
Article in European journal of public health, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
7 citing papers in PubMed.
- Federated analytics for non-communicable disease surveillance in the European health data space: a scoping review and conceptual framework.Frontiers in public health · 2026Article
- Turning data into insights in Jub, an extensible generic big data platform for life science and healthcare applications.Scientific reports · 2025Article
- Examining systemic differences in mortality after hip repair: a comparative analysis of 30- and 180-day adjusted mortality rates in five health systems.European journal of public health · 2025Observational
- User journeys in cross-European secondary use of health data: insights ahead of the European Health Data Space.European journal of public health · 2025Article
- Feasibility of mapping cross-country population coronavirus disease 2019 metrics in a federated design: learnings from a HealthData@EU Pilot use case.European journal of public health · 2025Observational
- Changes in mental health diagnosis and healthcare use in seven European countries before and during the COVID-19 pandemic (2017-21).European journal of public health · 2025Article
- Towards a European health information system: The BRIDGE Health, InfAct and PHIRI projects.Journal of health monitoring · 2024Article
Corrections and comments
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Authors and funding
8 authors.
Funding
Abstract
backgroundThe extensive and continuous reuse of sensitive health data could enhance the role of population health research on public decisions. This paper describes the design principles and the different building blocks that have supported the implementation and deployment of Population Health Information Research Infrastructure (PHIRI), the strengths and challenges of the approach and some future developments.
methodsThe design and implementation of PHIRI have been developed upon: (i) the data visiting principle-data does not move but code moves; (ii) the orchestration of the research question throughout a workflow that ensured legal, organizational, semantic and technological interoperability and (iii) a 'master-worker' federated computational architecture that supported the development of four uses cases.
resultsNine participants nodes and 28 Euro-Peristat members completed the deployment of the infrastructure according to the expected outputs. As a consequence, each use case produced and published their own common data model, the analytical pipeline and the corresponding research outputs. All the digital objects were developed and published according to Open Science and FAIR principles.
conclusionPHIRI has successfully supported the development of four use cases in a federated manner, overcoming limitations for the reuse of sensitive health data and providing a methodology to achieve interoperability in multiple research nodes.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.