Evidence map›Paper›PMID 38946163›Full record

ArticleThe Gerontologist2024

Comparing Unmet Service Needs Between Rural and Urban Family Caregivers of People Living With Alzheimer's Disease and Related Dementias: A Multisite Study.

Christina E Miyawaki, Angela McClellan, David Russell, Erin D Bouldin

Abstract readMulticenter StudyComparative Study
In one paragraph

Article in The Gerontologist, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Christina E MiyawakiGraduate College of Social Work, University of Houston, Houston, Texas, USA.ORCID 0000-0002-1234-1588
Angela McClellanGraduate College of Social Work, University of Houston, Houston, Texas, USA.ORCID 0000-0002-0964-4932
David RussellDepartment of Sociology, Appalachian State University, Boone, North Carolina, USA.ORCID 0000-0001-8433-0821
Erin D BouldinHealth Services Research & Development, Department of Veterans Affairs Medical Center, Salt Lake City, Utah, USA.ORCID 0000-0001-7550-309X

Funding

Mental Health Research Innovation Treatment Engagement Services Research Center FacultyNIA NIH HHS
6 · The paper itself

Abstract

BACKGROUND AND

objectivesThe scarcity of resources and available caregiving services in rural areas in the United States has been well documented. However, less research has compared unmet service needs between caregivers of people with Alzheimer's disease and related dementias (ADRD) in rural versus urban areas. RESEARCH DESIGN AND

methodsUsing semistructured interviews guided by theories of health service use and dependent care, we interviewed 20 family caregivers residing in rural areas of Western North Carolina and 18 caregivers within the urban setting of Houston, Texas, and compared their unmet service needs and contextual factors that facilitate their service use.

resultsThematic analyses revealed similar unmet service needs among rural and urban caregivers; however, the ways they approached and solved their challenges differed. Caregivers in rural areas wished for more information and caregiver support whereas urban caregivers looked for information they needed until they found the answers. Rural caregivers expressed guilt about using services because they felt they were limited and zero-sum whereas urban caregivers shared available resources so that other caregivers could use them as well. Unmet service needs for urban caregivers included more racially and ethnically specific services for people with ADRD in their ethnic-specific languages and foods while rural caregivers' cultural needs were not racially and ethnically specific but for more place-specific services. DISCUSSION AND IMPLICATIONS: Recommendations for rural caregivers included utilizing online and virtual opportunities and expanding their reach across the United States. For urban caregivers, increasing culturally tailored service options would likely increase access and use.

Indexed as

Alzheimer DiseaseCaregiversDementiaHealth Services Needs and DemandRural PopulationUrban PopulationAdultAgedAged, 80 and overFemaleHealth Services AccessibilityHumansMaleMiddle AgedNeeds AssessmentNorth CarolinaADRDHome- and community-based services (HCBS)Interview

Identifiers

PMID38946163
PMCPMC11308181

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.