Evidence map›Paper›PMID 38937817›Full record

ArticleBMC medical informatics and decision making2024

Operationalizing and digitizing person-centered daily functioning: a case for functionomics.

Esther R C Janssen, Ilona M Punt, Johan van Soest, Yvonne F Heerkens, Hillegonda A Stallinga, Huib Ten Napel, Lodewijk W van Rhijn, Barend Mons, Andre Dekker, Paul C Willems and 1 more

Abstract read
In one paragraph

Article in BMC medical informatics and decision making, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Review
  2. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Esther R C JanssenRadboud Institute for Health Sciences, IQ health, Radboud university medical centre, Nijmegen, The Netherlands. estherjanssen@viecuri.nl.
Ilona M PuntDepartment of Orthopedics and Research School Caphri, Maastricht University Medical Centre+, Maastricht, The Netherlands.
Johan van SoestBrightlands Institute for Smart Society (BISS), Faculty of Science and Engineering (FSE), Maastricht University, Heerlen, The Netherlands.
Yvonne F HeerkensDutch Institute of Allied Health Care (NPi), Amersfoort, The Netherlands.
Hillegonda A StallingaUniversity of Groningen, University Medical Center Groningen, Groningen, The Netherlands.
Huib Ten NapelRIVM/ Dutch WHO-FIC Collaborating Centre, Bilthoven, The Netherlands.
Lodewijk W van RhijnDepartment of Orthopedic surgery, Utrecht University, Utrecht, The Netherlands.
Barend MonsLeiden University Medical Centre, Leiden, The Netherlands.
Andre DekkerDepartment of Radiation Oncology (Maastro), GROW-School for Oncology, Maastricht University Medical Centre+, Maastricht, The Netherlands.
Paul C WillemsDepartment of Orthopedics and Research School Caphri, Maastricht University Medical Centre+, Maastricht, The Netherlands.
Nico L U van MeeterenTop Sector Life Sciences and Health (Health~Holland), The Hague, The Netherlands.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

An ever-increasing amount of data on a person's daily functioning is being collected, which holds information to revolutionize person-centered healthcare. However, the full potential of data on daily functioning cannot yet be exploited as it is mostly stored in an unstructured and inaccessible manner. The integration of these data, and thereby expedited knowledge discovery, is possible by the introduction of functionomics as a complementary 'omics' initiative, embracing the advances in data science. Functionomics is the study of high-throughput data on a person's daily functioning, that can be operationalized with the International Classification of Functioning, Disability and Health (ICF).A prerequisite for making functionomics operational are the FAIR (Findable, Accessible, Interoperable, and Reusable) principles. This paper illustrates a step by step application of the FAIR principles for making functionomics data machine readable and accessible, under strictly certified conditions, in a practical example. Establishing more FAIR functionomics data repositories, analyzed using a federated data infrastructure, enables new knowledge generation to improve health and person-centered healthcare. Together, as one allied health and healthcare research community, we need to consider to take up the here proposed methods.

Indexed as

Activities of Daily LivingHumansInternational Classification of Functioning, Disability and HealthPatient-Centered CareBig dataInformation technologyInteroperabilityPersonalized healthcareReal-world data

Identifiers

PMID38937817
PMCPMC11212415

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.