Evidence map›Paper›PMID 38929036›Full record

ReviewInternational journal of environmental research and public health2024

Rehabilitation Services for Young-Onset Dementia: Examples from High- and Low-Middle-Income Countries.

Aida Suárez-González, Sharon A Savage, Suvarna Alladi, Viviane Amaral-Carvalho, Faheem Arshad, Julieta Camino, Paulo Caramelli, Adelina Comas-Herrera, Julia Cook, Claudia Cooper and 14 more

Abstract readReview
PubMed Full text at PMC Publisher
In one paragraph

Review in International journal of environmental research and public health, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

24 authors.

Aida Suárez-GonzálezDementia Research Centre, UCL Queen Square Institute of Neurology, University College London (UCL), London WC1N 3BG, UK.ORCID 0000-0002-0904-1031
Sharon A SavageSchool of Psychological Sciences, College of Engineering, Science and Environment, The University of Newcastle, Callaghan, NSW 2308, Australia.ORCID 0000-0002-6477-5222
Suvarna AlladiDepartment of Neurology, National Institute of Mental Health and Neurosciences (NIMHANS), Hosur Road, Bangalore 560030, India.
Viviane Amaral-CarvalhoDepartamento de Neurologia, Faculdade de Medicina da Universidade de São Paulo, São Paulo 01246-903, SP, Brazil.ORCID 0000-0001-6958-3986
Faheem ArshadDepartment of Neurology, National Institute of Mental Health and Neurosciences (NIMHANS), Hosur Road, Bangalore 560030, India.
Julieta CaminoInstitute of Health and Social Care, London South Bank University, London SE1 0AA, UK.ORCID 0000-0002-6721-8675
Paulo CaramelliBehavioral and Cognitive Neurology Unit, Faculdade de Medicina, Universidade Federal de Minas Gerais, Belo Horizonte 30130-100, MG, Brazil.ORCID 0000-0002-4786-6990
Adelina Comas-HerreraCare Policy and Evaluation Centre, London School of Economics and Political Science, London WC2A 2AZ, UK.ORCID 0000-0002-9860-9062
Julia CookHerefordshire and Worcestershire Health and Care NHS Trust, Worcester WR5 1JR, UK.
Claudia CooperCentre for Psychiatry and Mental Health, Wolfson Institute of Population Health, Queen Mary University of London, London EC1M 6BQ, UK.
Laura García DíazSchool of Rehabilitation Science, McMaster University, Hamilton, ON L8S 1C7, Canada.ORCID 0000-0001-6990-2107
Stephanie M GrassoDepartment of Speech, Language and Hearing Sciences, University of Texas, Austin, TX 78712-1069, USA.
Regina JokelRotman Research Institute, Toronto, ON M6A 2X8, Canada.
Monica LavoieChaire de Recherche sur les Aphasies Primaires Progressives-Fondation de la Famille LEMAIRE, CHU de Québec-Université Laval, Québec, QC G1V 0A6, Canada.ORCID 0000-0002-7476-9782
Tomás LeónMemory Unit, Neurology Department, Memory and Neuropsychiatric Center (CMYN), Hospital del Salvador and Faculty of Medicine, University of Chile, Santiago 7500922, Chile.ORCID 0000-0003-3595-0586
Thomas PriyaDepartment of Psychiatric Social Work, National Institute of Mental Health and Neurosciences (NIMHANS), Hosur Road, Bangalore 560029, India.ORCID 0000-0003-2421-7303
Teresita Ramos FrancoMemory Unit, Neurology Department, Memory and Neuropsychiatric Center (CMYN), Hospital del Salvador and Faculty of Medicine, University of Chile, Santiago 7500922, Chile.
Cathleen Taylor-RubinSpeech Pathology Department, War Memorial Hospital, Sydney, NSW 2024, Australia.ORCID 0000-0003-4236-7401
Rosemary TownsendDyscover Ltd., Leatherhead KT22 0BN, UK.
Angelika Thöne-OttoClinic for Cognitive Neurology, University Hospital Leipzig, 04103 Leipzig, Germany.ORCID 0000-0003-2701-5037
Andrea SlachevskyMemory Unit, Neurology Department, Memory and Neuropsychiatric Center (CMYN), Hospital del Salvador and Faculty of Medicine, University of Chile, Santiago 7500922, Chile.
Anna VolkmerDivision of Psychology and Language Sciences, University College London (UCL), London WC1H 0AP, UK.
Wendy WeidnerAlzheimer's Disease International, London SE1 4PU, UK.
Claire Mc O'ConnorCentre for Positive Ageing, HammondCare, Sydney, NSW 2170, Australia.ORCID 0000-0002-3541-708X

Funding

An automated machine learning approach to language changes in Alzheimer’s disease and frontotemporal dementia across Latino and English-speaking populationsR01AG075775 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI MARIA LUISA GORNO TEMPINI, Adolfo Martin Garcia · 2023 to 2026
$7.2M
US-South American Initiative for Genetic-Neural-Behavioral Interactions in Human Neurodegenerative ResearchR01AG057234 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI Claudia Duran-Aniotz, Agustin M. Ibanez · 2019 to 2026
$6.1M
Bilingual Factors Associated with Cognitive Reserve and Linguistic Resilience in Hispanics with Primary Progressive AphasiaR01AG080470 · NIA · UNIVERSITY OF TEXAS AT AUSTIN · PI Stephanie M Grasso · 2023 to 2026
$2.8M
National Institute for Health and Care Research COV-LT2-0014National Institute for Health and Care Research NIHR203680NIA NIH HHS R01 AG021051NIA NIH HHS R01 AG057234NIA NIH HHS R01 AG075775NIA NIH HHS R01 AG080470UK Research and Innovation ES/Y007484/1
6 · The paper itself

Abstract

The WHO Dementia Global Action Plan states that rehabilitation services for dementia are required to promote health, reduce disability, and maintain quality of life for those living with dementia. Current services, however, are scarce, particularly for people with young-onset dementia (YOD). This article, written by an international group of multidisciplinary dementia specialists, offers a three-part overview to promote the development of rehabilitation services for YOD. Firstly, we provide a synthesis of knowledge on current evidence-based rehabilitative therapies for early-onset Alzheimer's disease (EOAD), behavioural variant frontotemporal dementia (bvFTD), primary progressive aphasia (PPA), and posterior cortical atrophy (PCA). Secondly, we discuss the characteristics of rehabilitation services for YOD, providing examples across three continents for how these services can be embedded in existing settings and the different roles of the rehabilitation multidisciplinary team. Lastly, we conclude by highlighting the potential of telehealth in making rehabilitation services more accessible for people with YOD. Overall, with this paper, we aim to encourage clinical leads to begin introducing at least some rehabilitation into their services, leveraging existing resources and finding support in the collective expertise of the broader multidisciplinary dementia professional community.

Indexed as

DementiaAge of OnsetDeveloped CountriesDeveloping CountriesHumansTelemedicineAlzheimerfrontotemporal dementiaposterior cortical atrophyprimary progressive aphasiarehabilitationyoung-onset dementia

Identifiers

PMID38929036
PMCPMC11203756

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.