ArticleBMC medical ethics2024
Children's voices on their values and moral dilemmas when being cared and treated for cancer- a qualitative interview study.
Article in BMC medical ethics, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.
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Who cites it
6 citing papers in PubMed.
- Listening to children's voices: Psychosocial and behavioral experiences and identity-related changes during the cancer trajectory.Asia-Pacific journal of oncology nursing · 2026Article
- When the Child Is Not Heard: Children's Rights and Epistemic Injustice in Paediatric Nursing Practice.Nursing philosophy : an international journal for healthcare professionals · 2026Article
- "Let my mother come and may it smell like strawberries": a qualitative study of illness experiences in school-age children with cancer (6-12 years).BMC pediatrics · 2026Article
- What Constitutes High-Quality Paediatric Palliative Care? A Qualitative Exploration of the Perspectives of Children, Young People, and Parents.The patient · 2025Article
- Ethics support personnel's perceptions of patient and parent participation in clinical ethics support services in pediatric oncology.BMC medical ethics · 2025Article
- Patient-Reported Experience Measures in Pediatric Healthcare-A Rapid Evidence Assessment.Journal of patient experience · 2024Article
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundChildhood cancers affect about 350 children every year in Sweden and are life-threatening diseases. During the treatment period, situations arise that can become morally challenging for the child. When knowing children's values and morally challenging situations in childhood cancer care, targeted ethics support could be developed and used in care.
aimTo explore children's values and moral dilemmas when undergoing cancer treatment.
methodsThis is a qualitative study based on empirical data. The data collection was conducted through three focus group interviews and six individual interviews with children between 10 and 18 years (n = 16). A content analysis methodology was used to generate themes. Children who were/have been treated for cancer at three childhood cancer centres in Sweden were invited to participate. The study was approved by the Swedish Ethical Review Authority. The children's participation was based on voluntariness and consent/assent.
findingsDuring the analysis, five themes of values emerged: Personal relationships, Bodily ease and identity, Feeling in control and being involved, Positive distractions and Right care that is needed. Their moral dilemmas were thematized into: Should I consider others or not? Should I rest or not? and Should I refuse treatment or not?
conclusionChildren undergoing cancer treatment want to have personal relationships with healthcare professionals. Their moral dilemmas were about questioning their own physical and psychological well-being against their expectations, the values of others and the treatment required. Further research is needed to understand how to deal with moral dilemmas in children undergoing cancer treatment.
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