Evidence map›Paper›PMID 38923185›Full record

ArticleAustralasian journal on ageing2024

Estimating potential palliative care needs for residential aged care: A population-based retrospective cohort study.

Greer B Humphrey, Maria C Inacio, Catherine Lang, Owen F Churches, Janet K Sluggett, Helena Williams, Deidre D Morgan, Timothy H M To, Andrew Kellie, Steve Wesselingh and 1 more

Abstract read
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In one paragraph

Article in Australasian journal on ageing, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Greer B HumphreyHealth Translation South Australia, South Australian Health and Medical Research Institute, Adelaide, South Australia, Australia.ORCID https://orcid.org/0000-0001-7782-5463
Maria C InacioRegistry of Senior Australians (ROSA), South Australian Health and Medical Research Institute, Adelaide, South Australia, Australia.ORCID https://orcid.org/0000-0001-8261-2665
Catherine LangRegistry of Senior Australians (ROSA), South Australian Health and Medical Research Institute, Adelaide, South Australia, Australia.
Owen F ChurchesHealth Translation South Australia, South Australian Health and Medical Research Institute, Adelaide, South Australia, Australia.
Janet K SluggettRegistry of Senior Australians (ROSA), South Australian Health and Medical Research Institute, Adelaide, South Australia, Australia.
Helena WilliamsSilver Chain Group Limited, Adelaide, South Australia, Australia.
Deidre D MorganPalliative and Supportive Services, College of Nursing and Health Sciences, Flinders University, Adelaide, South Australia, Australia.
Timothy H M ToDivision of Rehabilitation, Aged Care and Palliative Care, Flinders Medical Centre, Bedford Park, South Australia, Australia.
Andrew KellieEast Adelaide Healthcare, Newton, South Australia, Australia.
Steve WesselinghRegistry of Senior Australians (ROSA), South Australian Health and Medical Research Institute, Adelaide, South Australia, Australia.
Gillian E CaugheyRegistry of Senior Australians (ROSA), South Australian Health and Medical Research Institute, Adelaide, South Australia, Australia.ORCID https://orcid.org/0000-0003-1192-4121

Funding

Australian Government Medical Research Future Fund (MRFF) Primary Health Care Research Grant MRFF1200056Australian Government Medical Research Future Fund (MRFF) Rapid Applied Research Translation Program MRF9100005Hospital Research Foundation MCF-27-2019National Health and Medical Research Council (NHMRC) Investigator Grants GNT119378National Health and Medical Research Council (NHMRC) Investigator Grants GNT2016277National Health and Medical Research Council (NHMRC) Investigator Grants GNT2026400
6 · The paper itself

Abstract

objectivePopulation-based data on the required needs for palliative care in residential aged care have been highlighted as a key information gap. This study aimed to provide a comprehensive estimate of palliative care needs among Australia's residential aged care population using a validated algorithm based on causes of death.

methodsA population-based retrospective cohort study was conducted using data from the Registry of Senior Australians of non-Indigenous residents of residential aged care services in New South Wales, Victoria, and South Australia aged older than 65 years, who died between 2016 and 2017 (n = 71,677). An internationally validated algorithm was used to estimate and characterise potential palliative care needs based on causes of death. This estimate was compared to palliative care needs identified from funding-based care needs assessment data.

resultsNinety two per cent (n = 65,949) were estimated to have had potential palliative care needs prior to their death. Of these, 19% (n = 12,467) were assigned an end-of-life trajectory related to cancer, 61% (n = 40,511) to organ failure and 20% (n = 12,971) to frailty and dementia. By comparison, only 6% (n = 4430) of residents were assessed as needing palliative care by the funding-based care needs assessment.

conclusionsOver 90% of individuals dying in residential aged care may have benefited from a palliative approach to care. This need is substantially underestimated by the funding-based care needs assessment, which utilises a narrow definition of palliative care when death is imminent. There is a clear imperative to distinguish between palliative and end-of-life care needs within residential aged care to ensure appropriate and equitable access to palliative care.

Indexed as

Homes for the AgedNeeds AssessmentPalliative CareAgedAged, 80 and overAge FactorsAlgorithmsCause of DeathFemaleHealth Services Needs and DemandHumansMaleNursing HomesRegistriesRetrospective StudiesTerminal Carelong‐term carepalliative careresidential facilities

Identifiers

PMID38923185
PMCPMC11671706

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.