Evidence map›Paper›PMID 38923055›Full record

ArticleJournal of advanced nursing2025

Desired dementia care towards end of life: Development and experiences of implementing a new approach to improve person-centred dementia care.

Jesper M A Biesmans, Sascha R Bolt, Daisy J A Janssen, Toon Wintjens, Chandni Khemai, Jos M G A Schols, Jenny T Van Der Steen, Sandra M G Zwakhalen, Judith M M Meijers

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Article in Journal of advanced nursing, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Jesper M A BiesmansDepartment of Health Services Research, Maastricht University, Care and Public Health Research Institute, Maastricht, The Netherlands.ORCID https://orcid.org/0000-0002-5228-2674
Sascha R BoltTranzo, Tilburg School of Social and Behavioral Sciences, Tilburg University, Tilburg, The Netherlands.ORCID https://orcid.org/0000-0003-1570-0432
Daisy J A JanssenDepartment of Health Services Research, Maastricht University, Care and Public Health Research Institute, Maastricht, The Netherlands.
Toon WintjensDepartment of Health Services Research, Maastricht University, Care and Public Health Research Institute, Maastricht, The Netherlands.
Chandni KhemaiDepartment of Health Services Research, Maastricht University, Care and Public Health Research Institute, Maastricht, The Netherlands.
Jos M G A ScholsDepartment of Health Services Research, Maastricht University, Care and Public Health Research Institute, Maastricht, The Netherlands.
Jenny T Van Der SteenDepartment of Public Health and Primary Care, Leiden University Medical Center, Leiden, The Netherlands.ORCID https://orcid.org/0000-0002-9063-7501
Sandra M G ZwakhalenDepartment of Health Services Research, Maastricht University, Care and Public Health Research Institute, Maastricht, The Netherlands.ORCID https://orcid.org/0000-0002-7561-5259
Judith M M MeijersDepartment of Health Services Research, Maastricht University, Care and Public Health Research Institute, Maastricht, The Netherlands.ORCID https://orcid.org/0000-0002-5399-6513

Funding

ZonMw 10200012110004
6 · The paper itself

Abstract

aimsTo describe the co-creation of the 'Desired Dementia Care Towards End of Life' (DEDICATED) approach to improve person-centred palliative care for individuals with dementia and to describe the experiences of healthcare professionals during the approach's implementation.

methodsA needs assessment, comprising both qualitative and quantitative studies, informed palliative care needs of healthcare professionals, family caregivers and individuals with dementia. The approach was co-created with healthcare and education professionals, guided by the findings. Then, healthcare professionals were trained to implement the approach in their organizations. From April to June 2022, semi-structured interviews with actively engaged professionals were analysed using Conventional Content Analysis.

resultsThe needs assessment yielded six key themes: (1) raising palliative care awareness, (2) familiarization with a person with dementia, (3) communication about future care preferences, (4) managing pain and responsive behaviour, (5) enhancing interprofessional collaboration in advance care planning and (6) improving interprofessional collaboration during transitions to nursing homes. Interviews with 17 healthcare professionals revealed that active involvement in co-creating or providing feedback facilitated implementation. Overall, the DEDICATED approach was perceived as a valuable toolkit for optimizing palliative care for people with dementia and their loved ones.

conclusionCo-creating the DEDICATED approach with healthcare professionals facilitated implementation in daily practice. The approach was considered helpful in enhancing person-centred palliative dementia care. IMPACT STATEMENT: This study underscores the importance of active involvement of healthcare professionals in the research and development of new interventions or tools for palliative care, which can influence the successful implementation, dissemination and sustained usage of the developed tools. IMPLICATIONS FOR THE PROFESSION AND PATIENT CARE: The developed approach can improve person-centred palliative care for individuals with dementia, ultimately improving their quality of life and that of their loved ones. REPORTING

methodThis study used the Consolidated Criteria for Reporting Qualitative Research. PATIENT OF PUBLIC CONTRIBUTION: No patient or public contribution.

Indexed as

DementiaHealth PersonnelPalliative CarePatient-Centered CareTerminal CareAdultAgedAged, 80 and overCaregiversFemaleHumansMaleMiddle AgedNeeds AssessmentQualitative Researchdementianurse educationnursing home carepalliative careresearch implementation

Identifiers

PMID38923055
PMCPMC12535342

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.