Evidence map›Paper›PMID 38918715›Full record

ArticleBMC geriatrics2024

Understanding and alleviating informal caregiver burden through the development and validation of a caregiver strain index-based model in Taiwan.

Shuo-Chen Chien, Yu-Hung Chang, Chia-Ming Yen, Ying-Erh Chen, Chia-Chun Liu, Yu-Ping Hsiao, Ping-Yen Yang, Hong-Ming Lin, Tsung-En Yang, Xing-Hua Lu and 4 more

Abstract readValidation Study
In one paragraph

Article in BMC geriatrics, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

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3citing papers in PubMed
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1 · What the graph read from it

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2 · The registry

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3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

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4 · The record

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5 · Who and what money

Authors and funding

14 authors.

Shuo-Chen ChienInstitute of Population Health Sciences, National Health Research Institutes, Miaoli County, 350, Taiwan.
Yu-Hung ChangInstitute of Population Health Sciences, National Health Research Institutes, Miaoli County, 350, Taiwan.
Chia-Ming YenNational Center for Geriatrics and Welfare Research, National Health Research Institutes, Yunlin County, 632, Taiwan.
Ying-Erh ChenDepartment of Risk Management and Insurance, Tamkang University, New Taipei City, 251, Taiwan.
Chia-Chun LiuInstitute of Population Health Sciences, National Health Research Institutes, Miaoli County, 350, Taiwan.
Yu-Ping HsiaoInstitute of Population Health Sciences, National Health Research Institutes, Miaoli County, 350, Taiwan.
Ping-Yen YangInstitute of Population Health Sciences, National Health Research Institutes, Miaoli County, 350, Taiwan.
Hong-Ming LinInstitute of Population Health Sciences, National Health Research Institutes, Miaoli County, 350, Taiwan.
Tsung-En YangInstitute of Population Health Sciences, National Health Research Institutes, Miaoli County, 350, Taiwan.
Xing-Hua LuInstitute of Population Health Sciences, National Health Research Institutes, Miaoli County, 350, Taiwan.
I-Chien WuInstitute of Population Health Sciences, National Health Research Institutes, Miaoli County, 350, Taiwan.
Chih-Cheng HsuInstitute of Population Health Sciences, National Health Research Institutes, Miaoli County, 350, Taiwan.
Hung-Yi ChiouInstitute of Population Health Sciences, National Health Research Institutes, Miaoli County, 350, Taiwan.
Ren-Hua ChungInstitute of Population Health Sciences, National Health Research Institutes, Miaoli County, 350, Taiwan. rchung@nhri.edu.tw.

Funding

National Health Research Institutes PH-111-GP-07
6 · The paper itself

Abstract

backgroundQuantifying the informal caregiver burden is important for understanding the risk factors associated with caregiver overload and for evaluating the effectiveness of services provided in Long-term Care (LTC).

objectiveThis study aimed to develop and validate a Caregiver Strain Index (CSI)-based score for quantifying the informal caregiver burden, while the original dataset did not fully cover evaluation items commonly included in international assessments. Subsequently, we utilized the CSI-based score to pinpoint key caregiver burden risk factors, examine the initial timing of LTC services adoption, and assess the impact of LTC services on reducing caregiver burden.

methodsThe study analyzed over 28,000 LTC cases in Southern Taiwan from August 2019 to December 2022. Through multiple regression analysis, we identified significant risk factors associated with caregiver burden and examined changes in this burden after utilizing various services. Survival analysis was employed to explore the relationship between adopting the first LTC services and varying levels of caregiver burden.

resultsWe identified 126 significant risk factors for caregiver burden. The most critical factors included caregiving for other disabled family members or children under the age of three (β = 0.74, p < 0.001), the employment status of the caregiver (β = 0.30-0.53, p < 0.001), the frailty of the care recipient (β = 0.28-0.31, p < 0.001), and the behavioral symptoms of dementia in care recipients (β = 0.28-2.60, p < 0.05). Generally, caregivers facing higher burdens sought LTC services earlier, and providing home care services alleviated the caregiver's burden.

conclusionThis comprehensive study suggests policy refinements to recognize high-risk caregivers better early and provide timely support to improve the overall well-being of both informal caregivers and care recipients.

Indexed as

Caregiver BurdenCaregiversLong-Term CareAdultAgedAged, 80 and overFemaleHumansMaleMiddle AgedRisk FactorsStress, PsychologicalTaiwanBehavioral and psychological symptoms of dementia (BPSD)Informal caregiver burdenLong-term careMultiple regression analysisRisk factorsSurvival analysis

Identifiers

PMID38918715
PMCPMC11200844

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.