Evidence map›Paper›PMID 38914574›Full record

ArticleScientific reports2024

Defining well-being in psoriasis: A Delphi consensus among healthcare professionals and patients.

Esteban Daudén, I Belinchón, E Colominas-González, P Coto, P de la Cueva, F Gallardo, J L Poveda, E Ramírez, S Ros, R Ruíz-Villaverde and 2 more

Abstract readConsensus Statement
In one paragraph

Article in Scientific reports, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Esteban DaudénDepartment of Dermatology, Instituto de Investigación Sanitaria de La Princesa (IIS-IP), Hospital Universitario de La Princesa, Diego de León, 62, 28006, Madrid, Spain. estebandauden@gmail.com.ORCID 0000-0002-0676-1260
I BelinchónDepartment of Dermatology, Hospital General Universitario Dr Balmis-ISABIAL-UMH, Alicante, Spain.ORCID 0000-0002-6007-7320
E Colominas-GonzálezDepartment of Pharmacy, Hospital del Mar, Barcelona, Spain.ORCID 0000-0002-6835-2868
P CotoDepartment of Dermatology, Hospital Vital Álvarez Buylla, Mieres, Spain.
P de la CuevaDepartment of Dermatology, Hospital Universitario Infanta Leonor, Madrid, Spain.ORCID 0000-0003-4807-3551
F GallardoDepartment of Dermatology, Hospital del Mar, Barcelona, Spain.ORCID 0000-0002-6735-8459
J L PovedaDepartment of Pharmacy, Hospital Universitario y Politécnico La Fe, Valencia, Spain.ORCID 0000-0003-1800-6198
E RamírezDepartment of Pharmacy, Hospital Universitario de La Princesa, Madrid, Spain.ORCID 0000-0003-3053-7426
S RosDepartments of Dermatology and Rheumatology, and Cardiac Transplant Unit, Hospital de la Santa Creu i Sant Pau, Barcelona, Spain.ORCID 0000-0002-6267-1059
R Ruíz-VillaverdeDepartment of Dermatology, Hospital Universitario San Cecilio, Granada, Spain.ORCID 0000-0002-0381-6174
M ComellasOutcomes'10, Castellón de la Plana, Spain.ORCID 0000-0002-5275-9882
Luís LizánOutcomes'10, Universidad Jaume I, Castellón de la Plana, Spain.ORCID 0000-0001-6039-2454

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Psoriasis is a chronic skin disease that negatively impacts on patient's life. A holistic approach integrating well-being assessment could improve disease management. Since a consensus definition of well-being in psoriasis is not available, we aim to achieve a multidisciplinary consensus on well-being definition and its components. A literature review and consultation with psoriasis patients facilitated the design of a two-round Delphi questionnaire targeting healthcare professionals and psoriasis patients. A total of 261 panellists (65.1% patients with psoriasis, 34.9% healthcare professionals) agreed on the dimensions and components that should integrate the concept of well-being: emotional dimension (78.9%) [stress (83.9%), mood disturbance (85.1%), body image (83.9%), stigma/shame (75.1%), self-esteem (77.4%) and coping/resilience (81.2%)], physical dimension (82.0%) [sleep quality (81.6%), pain/discomfort (80.8%), itching (83.5%), extracutaneous manifestations (82.8%), lesions in visible areas (84.3%), lesions in functional areas (85.8%), and sex life (78.2%)], social dimension (79.5%) [social relationships (80.8%), leisure/recreational activities (80.3%), support from family/friends (76.6%) and work/academic life (76.5%)], and satisfaction with disease management (78.5%) [treatment (78.2%), information received (75.6%) and medical care provided by the dermatologist (80.1%)]. This well-being definition reflects patients' needs and concerns. Therefore, addressing them in psoriasis will optimise management, contributing to better outcomes and restoring normalcy to the patient's life.

Indexed as

Delphi TechniqueHealth PersonnelPsoriasisAdultFemaleHumansMaleMiddle AgedQuality of LifeSelf ConceptSurveys and QuestionnairesDelphiPsoriasisQuality of lifeWell-being

Identifiers

PMID38914574
PMCPMC11196587

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.