Evidence map›Paper›PMID 38911875›Full record

ArticleAlzheimer's & dementia (New York, N. Y.)

Using concept mapping to identify recruitment and engagement strategies for inclusion of LGBTQIA+ populations in Alzheimer's disease and related dementia research.

Brittany Klenczar-Castro, Krystal R Kittle, Joel G Anderson, Whitney Wharton, Andrea Gilmore-Bykovskyi, N Maritza Dowling, Jaime Perales-Puchalt, Jason D Flatt

Abstract read
In one paragraph

Article in Alzheimer's & dementia (New York, N. Y.). The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Review
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Brittany Klenczar-CastroDepartment of Social and Behavioral Health School of Public Health University of Nevada Las Vegas Nevada USA.
Krystal R KittleDepartment of Health Promotion and Policy School of Public Health & Health Sciences University of Massachusetts Amherst Amherst Massachusetts USA.
Joel G AndersonCollege of Nursing University of Tennessee Knoxville Tennessee USA.
Whitney WhartonNell Hodgson Woodruff School of Nursing Emory University Atlanta Georgia USA.
Andrea Gilmore-BykovskyiBerbee Walsh Department of Emergency Medicine School of Medicine and Public Health University of Wisconsin-Madison Madison Wisconsin USA.
N Maritza DowlingSchool of Nursing The George Washington University Washington District of Columbia USA.
Jaime Perales-PuchaltDepartment of Neurology University of Kansas Alzheimer's Disease Research Center Kansas City Kansas USA.
Jason D FlattDepartment of Social and Behavioral Health School of Public Health University of Nevada Las Vegas Nevada USA.ORCID https://orcid.org/0000-0003-1244-738X

Funding

University of Kansas Alzheimer's Disease Research Center (KU ADRC)P30AG072973 · NIA · UNIVERSITY OF KANSAS MEDICAL CENTER · PI Mohammad Haeri · 2021 to 2026
$25.3M
SAFE Futures: Supporting American Indian and Alaska Native (AIAN) Maternal Health through Virtual Engagement and Community EmpowermentP20GM139733 · NIGMS · UNIVERSITY OF KANSAS MEDICAL CENTER · PI Christina Marie Pacheco · 2023 to 2026
$11.5M
Building Community and Research Engagement among Sexual and Gender Minority Older Adults at Risk for Alzheimer’s Disease and Related DementiasR24AG066599 · NIA · EMORY UNIVERSITY · PI ANDERSON, JOEL G., FLATT, JASON DANE · 2021 to 2023
$2.3M
The Epidemiology of Alzheimer's Disease and Related Dementias in Sexual and Gender Minority Older Adults: Identifying Risk and Protective FactorsK01AG056669 · NIA · UNIVERSITY OF NEVADA LAS VEGAS · PI FLATT, JASON DANE · 2018 to 2022
$666k
Feasibility of a Novel Systems Approach for Improving Utilization of Alzheimer's Disease Services Among Latinos Attending Primary Care PracticesK01MD014177 · NIMHD · UNIVERSITY OF KANSAS MEDICAL CENTER · PI PERALES PUCHALT, JAIME · 2020 to 2024
$571k
NIA NIH HHS K01 AG056669NIA NIH HHS P30 AG072973NIA NIH HHS R24 AG066599NIMHD NIH HHS K01 MD014177
6 · The paper itself

Abstract

introductionPast Alzheimer's disease and related dementias (ADRD) research has not considered ways to ensure the representation of diverse sexual and gender minorities. This study used concept mapping (CM) to identify strategies for engaging and recruiting LGBTQIA+ older adults living with memory loss and their caregivers into ADRD research.

methodsCM, involving brainstorming, thematic analysis, and rating of strategies, was conducted with 46 members from one national and three local community advisory boards. Data was analyzed using The Concept Systems Global MAX™ web platform.

resultsOne hundred twenty-two solutions were identified from June through December 2022, and represented five key themes: aging focused, LGBTQIA+ specific, memory loss and caregiving support focused, physical advertisements, and other media. Promising strategies included partnering with LGBTQIA+ health centers, attending social groups for older adults, and increasing community representation in marketing. DISCUSSION: Tailored strategies, building trust, and community involvement are essential for engaging LGBTQIA+ individuals living with memory loss or ADRD and their caregivers in ADRD-focused research. Highlights: Innovative ways to ensure the inclusion of LGBTQIA+ older adults in Alzheimer's disease and related dementias (ADRD) research can be bolstered through collaboration with key community stakeholders.Promising strategies for recruitment and engagement include partnering with LGBTQIA+ centers, attending social groups for older adults, and ensuring diverse representation in marketing.Tailored recruitment and engagement strategies are crucial for building trust with LGBTQIA+ populations to increase participation in ADRD research.

Indexed as

Alzheimer's diseaseconcept mappingLGBTQIA+recruitment science

Identifiers

PMID38911875
PMCPMC11193133

What OpenQuestion holds

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LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.