Evidence map›Paper›PMID 38907206›Full record

ArticleBMC palliative care2024

End-of-life care needs in cancer patients: a qualitative study of patient and family experiences.

Mario López-Salas, Antonio Yanes-Roldán, Ana Fernández, Ainhoa Marín, Ana I Martínez, Ana Monroy, José M Navarro, Marta Pino, Raquel Gómez, Saray Rodríguez and 5 more

Abstract read
In one paragraph

Article in BMC palliative care, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Needs and health-related quality of life domains relevant to people in Europe with advanced cancer in need of palliative care: a systematic review of qualitative research.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026
    Pooled it
  2. Article
  3. Unmet Needs of Palliative Cancer Patients: A Grounded Theory Study.The American journal of hospice & palliative care · 2026
    Article
  4. Article
  5. Article
  6. Article
  7. Review
  8. Article
  9. Article
  10. Navigation as a system approach: A qualitative descriptive study to inform a statewide cancer navigation approach in Australia.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025
    Article
  11. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors.

Mario López-SalasAsociación Española Contra el Cáncer, Madrid, Spain. mario.lopez@contraelcancer.es.
Antonio Yanes-RoldánAsociación Española Contra el Cáncer, Madrid, Spain.
Ana FernándezAsociación Española Contra el Cáncer, Madrid, Spain.
Ainhoa MarínAsociación Española Contra el Cáncer, Madrid, Spain.
Ana I MartínezAsociación Española Contra el Cáncer, Madrid, Spain.
Ana MonroyAsociación Española Contra el Cáncer, Madrid, Spain.
José M NavarroAsociación Española Contra el Cáncer, Madrid, Spain.
Marta PinoAsociación Española Contra el Cáncer, Madrid, Spain.
Raquel GómezAsociación Española Contra el Cáncer, Madrid, Spain.
Saray RodríguezAsociación Española Contra el Cáncer, Madrid, Spain.
Sergio GarridoAsociación Española Contra el Cáncer, Madrid, Spain.
Sonia CousillasAsociación Española Contra el Cáncer, Madrid, Spain.
Tatiana NavasAsociación Española Contra el Cáncer, Madrid, Spain.
Víctor LapeñaAsociación Española Contra el Cáncer, Madrid, Spain.
Belén FernándezAsociación Española Contra el Cáncer, Madrid, Spain.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundCancer is a disease that transcends what is purely medical, profoundly affecting the day-to-day life of both patients and family members. Previous research has shown that the consequences of cancer are greatly aggravated in patients at the end of life, at a time when they must also grapple with numerous unmet needs. The main objective of this study was to obtain more in-depth insight into these needs, primarily in patients with end-stage cancer nearing death.

methodsSemi-structured interviews were conducted in Spain with cancer patients at the end of life (n = 3) and their family members (n = 12). The findings from the interviews were analyzed using qualitative thematic analysis and a grounded theory approach.

resultsFour major themes emerged from the interviews that explored the needs and concerns of patients with cancer at the end of life: (1) physical well-being (2) emotional well-being (3) social well-being and (4), needs relating to information and autonomous decision-making. The interviews also shed light on the specific needs of family members during this period, namely the difficulties of managing increased caregiver burden and maintaining a healthy work-life balance.

conclusionsA lack of support, information and transparency during a period of immense vulnerability makes the end-of-life experience even more difficult for patients with cancer. Our findings highlight the importance of developing a more in-depth understanding of the needs of this population, so that informed efforts can be made to improve palliative healthcare and implement more comprehensive care and support at the end of life.

Indexed as

FamilyNeoplasmsQualitative ResearchTerminal CareAdultAgedAged, 80 and overCaregiversFemaleGrounded TheoryHumansInterviews as TopicMaleMiddle AgedNeeds AssessmentSpainBarriersCancer patientsEnd-of-lifeFacilitatorsPalliative careUnmet needs

Identifiers

PMID38907206
PMCPMC11191331

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.