Evidence map›Paper›PMID 38902797›Full record

ArticleBMC psychology2024

Exploration of family caregivers' experiences on coping in dementia care in Ghana: a phenomenological study.

Precious Adade Duodu, Joshua Okyere, Bibha Simkhada, Ransford Akrong, Caroline Barker, Warren Gillibrand, Padam Simkhada

Abstract read
In one paragraph

Article in BMC psychology, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Precious Adade DuoduDepartment of Nursing, School of Human and Health Sciences, University of Huddersfield, Queensgate, Huddersfield, West Yorkshire, England, UK.ORCID http://orcid.org/0000-0003-4965-6302
Joshua OkyereDepartment of Population and Health, University of Cape Coast, Cape Coast, Ghana. joshuaokyere54@gmail.com.ORCID http://orcid.org/0000-0003-4080-7522
Bibha SimkhadaDepartment of Nursing, School of Human and Health Sciences, University of Huddersfield, Queensgate, Huddersfield, West Yorkshire, England, UK.ORCID http://orcid.org/0000-0002-8676-0718
Ransford AkrongEducational Assessment and Research Center, Osu, Accra, Ghana.ORCID http://orcid.org/0009-0005-1295-3241
Caroline BarkerDepartment of Nursing, School of Human and Health Sciences, University of Huddersfield, Queensgate, Huddersfield, West Yorkshire, England, UK.ORCID http://orcid.org/0000-0003-0899-6167
Warren GillibrandDepartment of Nursing, School of Human and Health Sciences, University of Huddersfield, Queensgate, Huddersfield, West Yorkshire, England, UK.ORCID http://orcid.org/0000-0001-8122-2833
Padam SimkhadaSchool of Human and Health Sciences, University of Huddersfield, Queensgate, Huddersfield, West Yorkshire, England, UK.ORCID http://orcid.org/0000-0002-5706-6479

Funding

Strategic Research Investment Seed Funding, School of Human and Health Sciences, University of Huddersfield, United Kingdom HHS013-01
6 · The paper itself

Abstract

backgroundDementia is an important public health and geriatric concern for sub-Saharan African countries, including Ghana. Evidence shows that persons living with dementia are often supported and cared for by family caregivers in the community. In the execution of these services to the persons living with dementia, family caregivers are overwhelmed and experience heightened stress that results in serious repercussions. Therefore, the aim of this study was to explore family caregivers' experiences on coping in dementia care in Ghana.

methodsAdopting a descriptive phenomenological design, individual face-to-face interviews were conducted among thirty unpaid family caregivers of persons living with dementia in Ghana. Semi-structured interview guides were used. The data analysis process followed Clarke and Braun's framework analysis.

resultsSix themes were generated from the textual data. These themes were captioned as: (1) empathy and perspective-taking; (2) family support and cohesion; (3) coaxing and pampering of persons living with dementia; (4) humour and positive communication; (5) spiritual support; and (6) ethical/moral consideration in dementia caregiving.

conclusionWe conclude that unpaid family caregivers of persons living with dementia in Ghana adopt varied strategies to cope with the strains of caregiving. Healthcare facilities that provide services to persons living with dementia could incorporate caregiver preparatory training or education for family caregivers. This training should focus on briefing family caregivers about the potential strains that they are likely to encounter. Also, the training could focus on equipping family caregivers with the knowledge and skills to effectively communicate and care for the persons living with dementia using person-centered approaches. Key stakeholders such as the Ghana Health Service and Alzheimer's Ghana must raise awareness about the dangers of caregivers' violation of the autonomy and freedom of persons living with dementia as they navigate through the challenges of caregiving. Lastly, faith-based institutions need to be considered as key stakeholders in dementia interventions since they could play a critical role.

Indexed as

Adaptation, PsychologicalCaregiversDementiaAdultAgedAged, 80 and overFamilyFemaleGhanaHumansMaleMiddle AgedQualitative ResearchAlzheimer’sCopingDementiaFamily caregiverPhenomenologyQualitative research

Identifiers

PMID38902797
PMCPMC11191216

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.