Evidence map›Paper›PMID 38896893›Full record

ArticlePatient education and counseling2024

Patient perspectives on liver transplant evaluation: A qualitative study.

Alexandra T Strauss, Janetta Brundage, Carolyn N Sidoti, Vedant Jain, Ahmet Gurakar, Katlyn Mohr, Macey Levan, Dorry L Segev, James P Hamilton, Hannah C Sung

Abstract read
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In one paragraph

Article in Patient education and counseling, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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0citing papers in PubMed
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1 · What the graph read from it

What it found

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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

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3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

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5 · Who and what money

Authors and funding

10 authors.

Alexandra T StraussDepartment of Medicine, Johns Hopkins University School of Medicine, Baltimore, USA. Electronic address: Astraus6@jhmi.edu.
Janetta BrundageDepartment of Surgery, Johns Hopkins University School of Medicine, Baltimore, USA.
Carolyn N SidotiDepartment of Surgery, New York University, New York, USA.
Vedant JainDepartment of Medicine, Johns Hopkins University School of Medicine, Baltimore, USA; Carle Illinois College of Medicine Department, University of Illinois, Champaign, USA.
Ahmet GurakarDepartment of Medicine, Johns Hopkins University School of Medicine, Baltimore, USA.
Katlyn MohrDepartment of Surgery, Johns Hopkins University School of Medicine, Baltimore, USA.
Macey LevanDepartment of Surgery, New York University, New York, USA.
Dorry L SegevDepartment of Surgery, New York University, New York, USA.
James P HamiltonDepartment of Medicine, Johns Hopkins University School of Medicine, Baltimore, USA.
Hannah C SungDepartment of Surgery, Johns Hopkins University School of Medicine, Baltimore, USA.

Funding

Patient Oriented Research in Solid Organ TransplantationK24AI144954 · NIAID · NEW YORK UNIVERSITY SCHOOL OF MEDICINE · PI SEGEV, DORRY L. · 2020 to 2024
$956k
Improving the liver transplant evaluation process: a data science-focused and team-based approachK08DK133638 · NIDDK · JOHNS HOPKINS UNIVERSITY · PI Alexandra Teresa Strauss · 2022 to 2026
$864k
NIAID NIH HHS K24 AI144954NIDDK NIH HHS K08 DK133638
6 · The paper itself

Abstract

objectiveLiver transplant (LT) evaluation is a complex process for patients involving multi-step and parallel medical, surgical, and psychosocial assessments of a patient's appropriateness for transplant. Patients may experience difficulties in navigating the evaluation process, potentially leading to disengagement and resulting in further health decline or death prior to completing evaluation. We aimed to identify and characterize patients' perceptions of undergoing LT evaluation.

methodsWe performed fourteen 30-45 min, semi-structured interviews between 3/2021-5/2021 with patients at a large LT center. Using the constant comparison method, we individually noted themes within and across interviews and codes.

resultsOur analysis generated 5 thematic dimensions related to patient engagement (i.e., patient involvement/activation): (1) psychological impact of evaluation on patients' lives; (2) information received during evaluation; (3) prior medical experience of the patient; 4) communication between patients and transplant providers; and (5) support system of the patients. Among these dimensions, we identified 8 themes.

conclusionLT patient engagement is a multi-dimensional component of LT evaluation that incorporates the psychological impact, information received, prior medical experience, communication, and support systems of patients. PRACTICAL IMPLICATIONS: This work can inform targeted interventions for increasing patient engagement during the LT evaluation process.

Indexed as

Interviews as TopicLiver TransplantationPatient ParticipationQualitative ResearchAdultAgedCommunicationFemaleHumansMaleMiddle AgedPhysician-Patient RelationsLiver transplantationPatient engagementQualitative research

Identifiers

PMID38896893
PMCPMC11323235

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.