ArticleJMIR aging2024
Social Media Discourse Related to Caregiving for Older Adults Living With Alzheimer Disease and Related Dementias: Computational and Qualitative Study.
Article in JMIR aging, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
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Who cites it
10 citing papers in PubMed.
- Positive Aspects of Caregiving: A Qualitative Analysis of Reddit Posts.Journal of the American Geriatrics Society · 2026Article
- Methodological Framework for the Design and Implementation of a US Latine-Hispanic Digital Brain Health Program: User-Centered Design Approach.JMIR formative research · 2026Article
- Self-Identified Age Cohorts and Personal Experience Sharing in Pseudonymous Online Spaces: Natural Language Processing Analysis of Reddit.JMIR aging · 2026Article
- Choice, struggle, and resilience: the experience of pre-loss grief among Chinese family caregivers of cancer patients.BMC palliative care · 2025Article
- Filial Care in Transition: Linguistic and Emotional Patterns in Online Discourse Among Emerging Adults in Taiwan.Behavioral sciences (Basel, Switzerland) · 2025Article
- Stressors Disclosed on Reddit by Caregivers of Older Adults and Social Support Received: Content Analysis.JMIR aging · 2025Article
- Online Communities as a Support System for Alzheimer Disease and Dementia Care: Large-Scale Exploratory Study.JMIR aging · 2025Article
- Understanding Challenges and Emotions of Informal Caregivers of General Older Adults and People With Alzheimer Disease and Related Dementia: Comparative Study.Journal of medical Internet research · 2025Article
- Article
- Crowdsourcing-Based Knowledge Graph Construction for Drug Side Effects Using Large Language Models with an Application on Semaglutide.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2024Article
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
backgroundIn the United States, caregivers of people living with Alzheimer disease and Alzheimer disease-related dementias (AD/ADRD) provide >16 billion hours of unpaid care annually. These caregivers experience high levels of stress and burden related to the challenges associated with providing care. Social media is an emerging space for individuals to seek various forms of support.
objectiveWe aimed to explore the primary topics of conversation on the social media site Reddit related to AD/ADRD. We then aimed to explore these topics in depth, specifically examining elements of social support and behavioral symptomology discussed by users.
methodsWe first generated an unsupervised topic model from 6563 posts made to 2 dementia-specific subreddit forums (r/Alzheimers and r/dementia). Then, we conducted a manual qualitative content analysis of a random subset of these data to further explore salient themes in the corpus.
resultsThe topic model with the highest overall coherence score (0.38) included 10 topics, including caregiver burden, anxiety, support-seeking, and AD/ADRD behavioral symptomology. Qualitative analyses provided added context, wherein users sought emotional and informational support for many aspects of the care experience, including assistance in making key care-related decisions. Users expressed challenging and complex emotions on Reddit, which may be taboo to express in person.
conclusionsReddit users seek many different forms of support, including emotional and specific informational support, from others on the internet. Users expressed a variety of concerns, challenges, and behavioral symptoms to manage as part of the care experience. The unique (ie, anonymous and moderated) nature of the forum allowed for a safe space to express emotions free from documented caregiver stigma. Additional support structures are needed to assist caregivers of people living with AD/ADRD.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.