Evidence map›Paper›PMID 38895996›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2024

Overarching Priorities for Health and Care Research in the United Kingdom: A Coproduced Synthesis of James Lind Alliance 'Top 10s'.

Joanna C Crocker, Lucy Moore, Margaret Ogden, Sally Crowe, Maaz Khan, Casper Schoemaker, Noémi B A Roy, Mark Taylor, Toto Gronlund, Teofila Bueser and 3 more

Abstract read
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Identifying Common Patient-Oriented Priorities for Child and Adolescent Health Research and Care: A Systematic Review of Priority Setting Partnerships.Health expectations : an international journal of public participation in health care and health policy · 2025
    Pooled it
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Joanna C CrockerNuffield Department of Primary Care Health Sciences, University of Oxford, Oxford, UK.ORCID 0000-0002-8223-0349
Lucy MooreNuffield Department of Primary Care Health Sciences, University of Oxford, Oxford, UK.ORCID 0000-0001-5089-993X
Margaret OgdenLay Partner, County Durham, UK.
Sally CroweCrowe Associates, Oxfordshire, UK.
Maaz KhanSchool of Clinical Medicine, University of Cambridge, Cambridge, UK.ORCID 0000-0001-5166-9079
Casper SchoemakerUniversity Medical Center Utrecht, Utrecht, Netherlands.ORCID 0000-0002-9547-0616
Noémi B A RoyOxford University Hospitals NHS Foundation Trust, Oxford, UK.
Mark TaylorNational Institute for Health and Care Research (NIHR) Coordinating Centre, Southampton, UK.
Toto GronlundJames Lind Alliance, Southampton, UK.
Teofila BueserSouth East Genomic Medicine Service Alliance, Guy's & St Thomas' Hospital NHS Foundation Trust, London, UK.
Madeline TatumFormerly Department for Continuing Education, University of Oxford, Oxford, UK.
Benjamin DaviesDepartment of Academic Neurosurgery, University of Cambridge, Cambridge, UK.
Teresa FinlayNuffield Department of Primary Care Health Sciences, University of Oxford, Oxford, UK.

Funding

National Institute for Health and Care Research BRC-1215-20008University of Oxford Returning Carers' Fund
6 · The paper itself

Abstract

introductionJames Lind Alliance (JLA) Priority Setting Partnerships (PSPs) produce 'Top 10' lists of health and care research priorities through a structured, shared decision-making process with patients or service users, carers and health or care professionals who identify questions that are most important to them. To date, over 150 PSPs in different areas of health and care have published research priorities. Some PSPs share similar priorities, which could be combined, promoted and addressed through collaborative research to increase value and reduce research waste.

aimThe aim of this study was to identify overarching themes common to JLA PSP priorities across different areas of health and care.

methodsOur analysis included 'Top 10' research priorities produced by UK-based JLA PSPs between 2016 and 2020. The priorities were coded deductively by the Health Research Classification System (HRCS) health category and research activity. We then carried out online workshops with patients, service users and carers to generate new codes not already captured by this framework. Within each code, multistakeholder inductive thematic analysis was used to identify overarching themes, defined as encompassing priorities from three or more PSPs covering two or more health categories. We used codesign methods to produce an interactive tool for end users to navigate the overarching themes.

resultsFive hundred and fifteen research priorities from 51 PSPs were included in our analysis. The priorities together encompassed 20 of 21 HRCS health categories, the most common being 'generic health relevance' (22%), 'mental health' (18%) and 'musculoskeletal' (14%). We identified 89 overarching themes and subthemes, which we organised into a hierarchy with seven top-level themes: quality of life, caregivers and families, causes and prevention, screening and diagnosis, treatment and management, services and systems and social influences and impacts.

conclusionThere are many overarching themes common to research priorities across multiple areas of health and care. To facilitate new research and research funding, we have developed an interactive tool to help researchers, funders and patients or service users to explore these priority topics. This is freely available to download online. PATIENT OR PUBLIC CONTRIBUTION: Patients or service users and carers were involved throughout the study, including deciding the aims, designing the study, analysing priorities to identify themes, interpreting and reporting the findings.

Indexed as

Health PrioritiesDecision Making, SharedHealth Services ResearchHumansResearchUnited Kingdomcarersinterdisciplinary researchpatientspriority settingresearch agendaresearch fundingresearch priorities

Identifiers

PMID38895996
PMCPMC11187853

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.