ArticleBMC psychiatry2024
Experiences of family caregivers taking care getting lost of persons with dementia: a qualitative study.
Article in BMC psychiatry, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 1 of them a synthesis that pooled it.
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Who cites it
7 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Supporting safe walking and managing missing incidents in dementia: a qualitative narrative synthesis of current evidence.Age and ageing · 2026Pooled it
- Experiences and coping strategies of family caregivers caring for people with behavioural and psychological symptoms of dementia: a systematic review of qualitative studies.International journal of nursing studies advances · 2026Review
- Alert Systems for People Living with Dementia who go Missing: Case Studies in Canada, Scotland, and the United States.The Canadian journal of nursing research = Revue canadienne de recherche en sciences infirmieres · 2026Article
- Building a Dementia-Ready Workforce in Malaysia: Family Caregivers' Insights.Dementia (London, England) · 2026Article
- Depressive symptoms among young adult caregivers of parents with dementia in South Korea: the 2019 community health survey.BMC public health · 2026Article
- Using Crowdsourcing Internet of Things Technology to Reduce Caregiver Worry in Dementia-Related Lost Episodes: Longitudinal Observational Study.JMIR human factors · 2025Observational
- Findings from a social media listening study on Chinese patients with Alzheimer's disease: a content analysis.General psychiatry · 2025Article
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundGetting lost with family members who have dementia is a significant source of stress for family caregivers. In Taiwan, family caregivers develop strategies to deal with dementia persons who may get lost. This study aimed to explore the experiences of family caregivers caring for persons with dementia who have been lost outside the home.
methodsA descriptive phenomenological method was used. The COREQ checklist was used to ensure the explicit reporting of data. A total of 20 family caregivers caring for persons with dementia who were lost outside their homes were selected from hospital outpatient clinics and a day care center in northern Taiwan using purposive sampling. Data were analyzed using the Giorgi analysis method.
resultsFive main themes emerged: (i) surprised persons with dementia lost outside, (ii) using strategies to prevent persons with dementia from getting lost, (iii) using strategies to find lost persons with dementia, (iv) exhaustion in long-term care persons with dementia, and (v) coping with the care load. It was found that family caregivers were surprised, nervous, and worried about persons with dementia being lost outside. They used the first strategy to supervise persons with dementia to prevent external losses. In addition, long-term supervision of persons with dementia led to mental exhaustion in the family caregivers. Finally, the family caregivers learned about loss prevention strategies and obtained family support and care replacement workers to reduce the care burden.
conclusionsIt is essential to teach family caregivers early to prevent persons with dementia from losing external strategies. Nurses also provide long-term care services to reduce the care burden on family caregivers.
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