Evidence map›Paper›PMID 38882255›Full record

ArticleDigital health

My Health Coach: Community members' perspectives on a mobile health tool for adults with fetal alcohol spectrum disorders.

Emily L Speybroeck, Christie Petrenko, Cristiano Tapparello, Katrina Griffin, Emily Hargrove, Myles Himmelreich, Anique Lutke, C J Lutke, Maggie May, Shuo Zhang and 3 more

Abstract read
In one paragraph

Article in Digital health. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Increasing Access to FASD-Informed Care: Bringing an Adapted Intervention to Mental Health Providers.Evidence-based practice in child and adolescent mental health · 2026
    Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Emily L SpeybroeckDepartment of Psychology, University of Rochester, Rochester, NY, USA.ORCID https://orcid.org/0009-0008-2506-8534
Christie PetrenkoDepartment of Psychology, University of Rochester, Rochester, NY, USA.ORCID https://orcid.org/0000-0003-2091-3686
Cristiano TapparelloDepartment of Psychology, University of Rochester, Rochester, NY, USA.ORCID https://orcid.org/0000-0002-8016-8676
Katrina GriffinThe International Adult Leadership Collaborative of the FASD Changemakers, USA.
Emily HargroveThe International Adult Leadership Collaborative of the FASD Changemakers, USA.
Myles HimmelreichThe International Adult Leadership Collaborative of the FASD Changemakers, USA.
Anique LutkeThe International Adult Leadership Collaborative of the FASD Changemakers, USA.
C J LutkeThe International Adult Leadership Collaborative of the FASD Changemakers, USA.
Maggie MayThe International Adult Leadership Collaborative of the FASD Changemakers, USA.
Shuo ZhangUniversity of Miami, Coral Gables, FL, USA.
Janna LooneyDepartment of Psychology, University of Rochester, Rochester, NY, USA.
Carson Kautz-TurnbullDepartment of Psychology, University of Rochester, Rochester, NY, USA.
Madeline N RockholdDepartment of Psychology, University of Rochester, Rochester, NY, USA.ORCID https://orcid.org/0000-0002-1698-2702

Funding

Leveraging Technology to Increase Quality of Life for FASD Across the LifespanU01AA026104 · NIAAA · UNIVERSITY OF ROCHESTER · PI CHRISTIE Lynn McGee Petrenko, Cristiano Tapparello · 2017 to 2026
$3.7M
Mobile Health Tools to Promote Health in Adults with FASDUH2AA029050 · NIAAA · UNIVERSITY OF ROCHESTER · PI PETRENKO, CHRISTIE LYNN MCGEE, TAPPARELLO, CRISTIANO · 2021 to 2022
$381k
NIAAA NIH HHS U01 AA026104NIAAA NIH HHS UH2 AA029050
6 · The paper itself

Abstract

Objectives: Fetal alcohol spectrum disorders (FASD) affect the health and development of people across the lifespan. Adults with FASD experience significant barriers to care. Accessible and scalable solutions are needed. In partnership with members of the International Adult Leadership Collaborative of FASD Changemakers, an international group of adults with FASD, we developed a mobile health (mHealth) application based on self-determination theory (SDT), called "My Health Coach," to promote self-management and health advocacy. Methods: This project follows an established user-centered design approach to app development and evaluation, allowing for feedback loops promoting iterative change. Research staff and ALC members co-led online focus groups ( Results: Analyses show overall positive impressions of the My Health Coach app. Participants were enthusiastic about the proposed features and tools the app will provide. Discussions and free responses revealed SDT constructs (autonomy, competence, relatedness) are a strong fit with participants' perceived outcomes shared in their evaluation of the prototype. Interesting recommendations were made for additional features that would further promote SDT constructs. Conclusions: This project demonstrates advantages of community-engaged partnerships in FASD research. Adults with FASD have a strong interest in scalable mHealth tools and described the acceptability of our initial design. App features and tools promoted SDT constructs.

Indexed as

adultscommunity engaged partnershipsFASDFetal alcohol spectrum disordersmHealthmobile health tools

Identifiers

PMID38882255
PMCPMC11179453

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.