Evidence map›Paper›PMID 38880507›Full record

ArticleArchives of disease in childhood. Fetal and neonatal edition2024

Top 10 research priorities for congenital diaphragmatic hernia in Australia: James Lind Alliance Priority Setting Partnership.

Roberto Chiletti, Courtney Vodopic, Emiko Hunt, Jess Lawer, Monique Bertinetti, Stephanie Malarbi, Valerie Kyritsis, Scott Petersen, David Stewart, Jean Hellstern and 4 more

Abstract read
In one paragraph

Article in Archives of disease in childhood. Fetal and neonatal edition, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors.

Roberto ChilettiThe Royal Children's Hospital, Melbourne, Victoria, Australia.
Courtney VodopicCongenital Diaphragmatic Hernia Australia, Geelong, Victoria, Australia.
Emiko HuntCongenital Diaphragmatic Hernia Australia, Geelong, Victoria, Australia.
Jess LawerCongenital Diaphragmatic Hernia Australia, Geelong, Victoria, Australia.
Monique BertinettiThe Royal Children's Hospital, Melbourne, Victoria, Australia.
Stephanie MalarbiThe Royal Children's Hospital, Melbourne, Victoria, Australia.
Valerie KyritsisLa Trobe University, Melbourne, Victoria, Australia.
Scott PetersenMater Mothers' Hospital, South Brisbane, Queensland, Australia.
David StewartThe Royal Children's Hospital, Melbourne, Victoria, Australia.
Jean HellsternMurdoch Children's Research Institute, Melbourne, Victoria, Australia.
Michael StewartThe Royal Children's Hospital, Melbourne, Victoria, Australia.ORCID http://orcid.org/0000-0003-2235-4814
Leah HickeyThe Royal Children's Hospital, Melbourne, Victoria, Australia.ORCID http://orcid.org/0000-0001-8732-1453
David G TingayMurdoch Children's Research Institute, Melbourne, Victoria, Australia.ORCID http://orcid.org/0000-0003-1522-4691
Trisha M PrenticeThe Royal Children's Hospital, Melbourne, Victoria, Australia trisha.prentice@mcri.edu.au.ORCID http://orcid.org/0000-0003-4271-7950

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesThe Gaps in the Congenital Diaphragmatic Hernia (CDH) Journey Priority Setting Partnership (PSP) was developed in collaboration with CDH Australia, James Lind Alliance (JLA) and the Murdoch Children's Research Institute to identify research priorities for people with CDH, their families and healthcare workers in Australasia.

designResearch PSP in accordance with the JLA standardised methodology.

settingAustralian community and institutions caring for patients with CDH and their families. PATIENTS: CDH survivors, families of children born with CDH (including bereaved) and healthcare professionals including critical care physicians and nurses (neonatal and paediatric), obstetric, surgical, allied health professionals (physiotherapists, speech pathologists and speech therapists) and general practitioners.

main outcome measureTop 10 research priorities for CDH.

results377 questions, from a community-based online survey, were categorised and collated into 50 research questions. Through a further prioritisation process, 21 questions were then discussed at a prioritisation workshop where they were ranked by 21 participants (CDH survivors, parents of children born with CDH (bereaved and not) and 11 multidisciplinary healthcare professionals) into their top 10 research priorities.

conclusionStakeholders' involvement identified the top 10 CDH-related research questions, spanning from antenatal care to long-term functional outcomes, that should be prioritised for future research to maximise meaningful outcomes for people with CDH and their families.

Indexed as

Hernias, Diaphragmatic, CongenitalAustraliaBiomedical ResearchFemaleHealth PersonnelHealth PrioritiesHumansInfant, NewbornResearchChild DevelopmentIntensive Care Units, NeonatalIntensive Care Units, Paediatric

Identifiers

PMID38880507
PMCPMC11672073

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.