Evidence map›Paper›PMID 38879786›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2024

Coproducing Health Information Materials With Young People: Reflections and Lessons Learned.

Alice Faux-Nightingale, Glenys Somayajula, Charlotte Bradbury, Lucy Bray, Claire Burton, Carolyn A Chew-Graham, Aaliyah Gardner, Alex Griffin, Helen Twohig, Victoria Welsh

Abstract read
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Alice Faux-NightingaleSchool of Medicine, Keele University, Newcastle-under-Lyme, UK.ORCID 0000-0002-4865-181X
Glenys SomayajulaSchool of Medicine, Keele University, Newcastle-under-Lyme, UK.ORCID 0000-0002-2212-5555
Charlotte BradburySchool of Medicine, Keele University, Newcastle-under-Lyme, UK.
Lucy BrayFaculty of Health, Social Care and Medicine, Edge Hill, Ormskirk, UK.ORCID 0000-0001-8414-3233
Claire BurtonSchool of Medicine, Keele University, Newcastle-under-Lyme, UK.ORCID 0000-0003-4688-3075
Carolyn A Chew-GrahamSchool of Medicine, Keele University, Newcastle-under-Lyme, UK.ORCID 0000-0002-9722-9981
Aaliyah GardnerMedia Studies, School of Humanities, Keele University, Newcastle-under-Lyme, UK.
Alex GriffinMedia Studies, School of Humanities, Keele University, Newcastle-under-Lyme, UK.
Helen TwohigSchool of Medicine, Keele University, Newcastle-under-Lyme, UK.ORCID 0000-0001-8781-1268
Victoria WelshSchool of Medicine, Keele University, Newcastle-under-Lyme, UK.ORCID 0000-0002-9156-5271

Funding

National Institute of Health and Social Care Research, School of Primary Care Research 686
6 · The paper itself

Abstract

backgroundThis paper describes and critically reflects on how children and young people (CYP) acted as public advisors to coproduce health information materials about Long Covid for younger audiences. This work was underpinned by the Lundy model, a framework which provides guidance on facilitating CYP to actively contribute to matters which affect them.

methodsCoproduction activity sessions took place with CYP in schools as well as video conferences with a CYP stakeholder group and CYP with Long Covid. Activities encouraged CYP to focus on the content, format, and design of materials and used problem-based and collaborative learning to encourage engagement with the project. Using a range of methods and open discussion, CYP codesigned a series of Long Covid health information materials for younger audiences.

resultsSixty-six CYP (aged 10-18), and two young adults were involved. CYP codesigned specifications for the final materials and provided feedback on early designs. The project led to the development of a series of health information materials targeted at CYP: a short social media campaign with six short videos and a 12-page illustrated leaflet about Long Covid; released on social media and distributed in local area. All the CYP were positive about the project and their involvement. DISCUSSION: Involving CYP led to the development of innovative and engaging information materials (influence). Developing rapport was important when working with CYP and this was facilitated by using approaches and activities to establish an environment (space) where the CYP felt comfortable sharing their views (voice) and being listened to (audience) by the adults in the project. Working with external groups who are willing to share their expertise can help the meaningful involvement of voices 'less heard'. PUBLIC CONTRIBUTION: One CYP coapplicant contributed to the project design and facilitation of PPIE sessions, 64 CYP were involved in the PPIE sessions to design and feedback on materials. Two young adult media producers worked with CYP to produce these materials, another CYP supported this process. Three public contributors were involved in the preparation of this manuscript.

Indexed as

COVID-19AdolescentChildConsumer Health InformationFemaleHumansMaleSARS-CoV-2Social MediaCovid‐19Long Covidpatient and public involvement and engagement (PPIE)young people

Identifiers

PMID38879786
PMCPMC11180295

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.