Evidence map›Paper›PMID 38878200›Full record

ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2024

Piloting a new cross-sector model of care to support parents with cancer: feasibility and acceptability of the Parent Support Worker role.

X Skrabal Ross, S Konings, E Schiena, J Phipps-Nelson, Y Wang, F Hodgson, P Patterson, F E J McDonald

Abstract readMulticenter Study
PubMed Full text at PMC Publisher
In one paragraph

Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

X Skrabal RossPolicy and Patient Department, Canteen Australia, Sydney, Australia.ORCID http://orcid.org/0000-0001-6748-3260
S KoningsPsycho-Oncology Department, Clinique Saint-Jean, Brussels, Belgium.ORCID http://orcid.org/0000-0002-9303-2997
E SchienaDepartment of Allied Health, Peter MacCallum Cancer Centre, Melbourne, Australia.
J Phipps-NelsonDepartment of Oncology, Sir Peter MacCallum, University of Melbourne, Melbourne, Australia.ORCID http://orcid.org/0000-0002-0326-7822
Y WangPolicy and Patient Department, Canteen Australia, Sydney, Australia.ORCID http://orcid.org/0000-0001-5671-7957
F HodgsonJohn Hunter Hospital, Newcastle, Australia.
P PattersonPolicy and Patient Department, Canteen Australia, Sydney, Australia.
F E J McDonaldPolicy and Patient Department, Canteen Australia, Sydney, Australia. fiona.mcdonald@sydney.edu.au.ORCID http://orcid.org/0000-0003-4484-4929

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeA new Parent Support Worker (PSW) service was piloted in three Australian hospitals. This study assesses the feasibility and acceptability (including preliminary effectiveness) of the service in supporting cancer patients with children.

methodsA multi-site, mixed-methods study collected quantitative and qualitative data on the effectiveness of the service (pre post-test, n = 36), qualitative and quantitative data on acceptability of the service (survey, n = 43), and qualitative data on acceptability (semi-structured interviews, n = 13). Feasibility was assessed through rates of service uptake amongst referred parents.

resultsOf 1133 parents referred, 810 (71%) accepted to receive the service, suggesting high interest in PSW support. Interviewees likewise reported that the service was accessible and facilitated further referrals, indicating good feasibility. Surveys completed three months after accessing PSW support showed high acceptability and satisfaction. Additionally, there was preliminary evidence of service impacts: parents' distress, parenting concerns, parenting efficacy, and stress about situations of concern improved significantly from pre- to post-service (all p < 0.005). Interviewees further described how their emotional coping and confidence to support and communicate with their children had improved through contact with the service.

conclusionThe PSW service, integrated into a novel cross-sector model of care, showed to be feasible and acceptable to parent patients and their partners and improved psychological and parenting outcomes. The study suggests refinements to the service and the need for future larger studies to explore the effectiveness of the service in improving parents' outcomes. This study complements previous evidence on the implementation of the PSW service in hospitals.

Indexed as

Feasibility StudiesNeoplasmsParentsAdaptation, PsychologicalAdolescentAdultAustraliaChildChild, PreschoolFemaleHumansMaleMiddle AgedPilot ProjectsSocial SupportSurveys and QuestionnairesAdolescentsFamily supportHealth systemsOncologyParental cancerYoung adults

Identifiers

PMID38878200
PMCPMC11180003

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.