Evidence map›Paper›PMID 38877556›Full record

ArticleBMC health services research2024

Patient-driven research priorities for patient-centered measurement.

A Fuchsia Howard, Linda Warner, Lena Cuthbertson, Richard Sawatzky

Abstract read
In one paragraph

Article in BMC health services research, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Mapping methods and tools for measuring patient experience in oncology settings: a scoping review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Article
  3. Article
  4. Article
  5. Article
  6. Article
  7. Patient-Centered Approach to Assessing Voice Impairment.JAMA otolaryngology-- head & neck surgery · 2025
    Article
  8. Article
  9. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

A Fuchsia HowardSchool of Nursing, The University of British Columbia, T201-2211 Wesbrook Mall, Vancouver, V6T 2B5, BC, Canada. fuchsia.howard@ubc.ca.ORCID http://orcid.org/0000-0001-5704-1733
Linda WarnerSchool of Nursing, The University of British Columbia, T201-2211 Wesbrook Mall, Vancouver, V6T 2B5, BC, Canada.
Lena CuthbertsonOffice of Patient Centred Measurement, British Columbia, Ministry of Health, 1190 Hornby Street, 341F, Vancouver, BC, V6Z 2K5, Canada.
Richard SawatzkySchool of Nursing, Trinity Western University, 22500 University Drive, Langley, BC, V2Y 1Y1, Canada.ORCID http://orcid.org/0000-0002-8042-190X

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundPatient-centred measurement (PCM) emphasizes a holistic approach wherein the voices of patients are reflected in the standardized use of patient-reported outcome and experience measures and are represented throughout the continuum of measurement activities. Given the challenges of routinely integrating patient self-reports into clinical care decisions, the perspectives of all healthcare system stakeholders, especially patients, is necessary to advance the science of PCM. The purpose of the analysis we report on here was to identify patient-driven research priorities for advancing the science of PCM.

methodsWe analyzed data from seven focus groups that were conducted across British Columbia, Canada and that included a total of 73 patients, using qualitative inductive analysis and constant comparative methods.

resultsWe found that the patients conveyed a desire for PCM to contribute to healthcare decisions, specifically that their individual healthcare needs and related priorities as they see them are always front and centre, guiding all healthcare interactions. The patients' commentaries highlighted intersecting priorities for research on advancing the science of PCM that would help transform care by (1) enhancing the patient-provider relationship, (2) giving voice to patients' stories, (3) addressing inclusivity, (4) ensuring psychological safety, (5) improving healthcare services and systems to better meet patient needs, and (6) bolstering healthcare system accountability.

conclusionsThese priorities provide direction for future research efforts that would be positioned to make progress towards better health, better care, and better use of resources for individuals and for society.

Indexed as

Focus GroupsPatient-Centered CareAdultAgedBritish ColumbiaFemaleHumansMaleMiddle AgedPatient ParticipationPatient Reported Outcome MeasuresQualitative ResearchMeasurementPatient-centered measurementPatient engagementPatient-reported experience measuresPatient-reported outcome measuresQualitativeResearch priorities

Identifiers

PMID38877556
PMCPMC11179265

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.