Small Steps, Big Vision: using multi-stage qualitative research to develop a grab-and-go guide to support utilisation of the Ambitions for Palliative and End of Life Care framework.

Erica Borgstrom, Joanne Jordan, Una St Ledger, Claire Henry

Abstract read

In one paragraph

Article in BMC palliative care, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

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4 · The record

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5 · Who and what money

Authors and funding

4 authors.

Erica BorgstromFaculty of Wellbeing, Education and Language Studies, The Open University, Walton Hall, Milton Keynes, MK7 6AA, UK. erica.borgstrom@open.ac.uk.ORCID http://orcid.org/0000-0002-1009-2928

Joanne JordanFaculty of Wellbeing, Education and Language Studies, The Open University, Walton Hall, Milton Keynes, MK7 6AA, UK.

Una St LedgerFaculty of Wellbeing, Education and Language Studies, The Open University, Walton Hall, Milton Keynes, MK7 6AA, UK.

Claire HenryFaculty of Wellbeing, Education and Language Studies, The Open University, Walton Hall, Milton Keynes, MK7 6AA, UK.

Funding

Marie Curie MCSGS-21-602

6 · The paper itself

Abstract

backgroundThe Ambitions for Palliative and End of Life Care is a national framework for local action in England co-produced by over 30 partners; little research has been conducted on how the Framework is received and used. This study sought to examine and support how people understand, interpret, and implement the Framework.

methodsA multi-stage qualitative methodology involving four stages of data collection: (1) case study interviews, (2) focus groups, (3) interactive workshops, and (4) Evidence Cafés. From initial interviews, ongoing thematic data analysis informed the design and focus of subsequent stages as part of a process of knowledge transfer.

resultsA practical resource to support service provision and development was produced; a grab-and-go guide called "Small Steps, Big Visions". It focuses on the eight foundations in the Ambitions Framework, with additional guidance on collaboration and partnership working, and sharing learning. Each foundation is presented with a 'what' (definition), 'ask' (prompt questions), and 'examples in action' (drawn from case studies).

conclusionsResearch can contribute to policy implementation to advance palliative and end of life care. The engagement and input of those responsible for implementation is key.

Indexed as

Focus GroupsPalliative CareQualitative ResearchTerminal CareEnglandHumansEducation and trainingEnd of life careHospice careKnowledge exchangePolicyPolicy implementationTerminal care

Identifiers

PMID38877509

DOI10.1186/s12904-024-01466-8

PMCPMC11179334

What OpenQuestion holds

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LicenceCC BY

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