Evidence map›Paper›PMID 38865716›Full record

ArticleBlood advances2024

Listening to patients and parents with sickle cell disease: the totality of gene therapy risks may outweigh the perceived benefits.

Liza-Marie Johnson, Akshay Sharma, Yvonne Carroll, Dominique Goodson, Belinda N Mandrell, Jami Gattuso, Amanda Young, Jacklyn Boggs, Benjamin S Wilfond, Yoram Unguru

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Blood advances, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Review
  2. Article
  3. Review
  4. Article
  5. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Liza-Marie JohnsonDepartment of Oncology, St. Jude Children's Research Hospital, Memphis, TN.ORCID 0000-0002-7124-979X
Akshay SharmaBone Marrow Transplantation and Cellular Therapy, St. Jude Children's Research Hospital, Memphis, TN.ORCID 0000-0003-3281-2081
Yvonne CarrollDepartment of Hematology, St. Jude Children's Research Hospital, Memphis, TN.
Dominique GoodsonSickle Cell Disease Consortium, Cumming, GA.
Belinda N MandrellDivision of Nursing Research, St. Jude Children's Research Hospital, Memphis, TN.ORCID 0000-0002-6041-7559
Jami GattusoDivision of Nursing Research, St. Jude Children's Research Hospital, Memphis, TN.
Amanda YoungDepartment of Communication and Film and Affiliate Faculty, School of Public Health, University of Memphis, Memphis, TN.ORCID 0000-0003-2319-1594
Jacklyn BoggsSection of Bioethics, St. Jude Children's Research Hospital, Memphis, TN.
Benjamin S WilfondTreuman Katz Center for Pediatric Bioethics and Palliative Care and the Seattle Children's Research Institute, Seattle, WA.
Yoram UnguruDivision of Pediatric Hematology/Oncology, The Herman and Walter Samuelson Children's Hospital at Sinai and Johns Hopkins Berman Institute of Bioethics, Baltimore, MD.ORCID 0000-0002-2250-300X

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

PubMed holds no abstract for this paper.

Identifiers

PMID38865716
PMCPMC11583866

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.