Evidence map›Paper›PMID 38861033›Full record

ArticleJournal of neurology2024

Unveiling the invisible: a qualitative interview study on the impact of young onset Parkinson's disease on (ex-partners).

Willanka Mariëlle Kapelle, Angelika D Geerlings, Inge Mutsaers, Bastiaan R Bloem, Marjan J Meinders, Bart Post

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of neurology, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Review
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Willanka Mariëlle KapelleDepartment of Neurology, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, Center of Expertise for Parkinson and Movement Disorders, P.O. Box 9101 (internal code 914), 6500 HB, Nijmegen, The Netherlands. Willanka.Kapelle@radboudumc.nl.ORCID http://orcid.org/0000-0003-1998-740X
Angelika D GeerlingsDepartment of Neurology, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, Center of Expertise for Parkinson and Movement Disorders, P.O. Box 9101 (internal code 914), 6500 HB, Nijmegen, The Netherlands.
Inge MutsaersInge Mutsaers Research and Writing, Nijmegen, The Netherlands.
Bastiaan R BloemDepartment of Neurology, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, Center of Expertise for Parkinson and Movement Disorders, P.O. Box 9101 (internal code 914), 6500 HB, Nijmegen, The Netherlands.
Marjan J MeindersDepartment of Neurology, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, Center of Expertise for Parkinson and Movement Disorders, P.O. Box 9101 (internal code 914), 6500 HB, Nijmegen, The Netherlands.
Bart PostDepartment of Neurology, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, Center of Expertise for Parkinson and Movement Disorders, P.O. Box 9101 (internal code 914), 6500 HB, Nijmegen, The Netherlands.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionLiving with young onset Parkinson's disease (YOPD) not only affects the persons with YOPD, but also their families. Although caregiver burden has been researched in Parkinson's disease in general, little is known about the specific impact of having an (ex-)partner with YOPD. This exploratory study aimed to explore the impact of having an (ex-)partner with YOPD on daily life. MATERIALS AND

methodsWe used a qualitative approach including semi-structured interviews with 16 (ex-)partners of people with YOPD. Interviews were audio-taped and transcribed verbatim. Qualitative thematic analysis was used to analyze the interview data.

resultsQualitative analysis revealed nine themes to describe the impact of having an (ex-)partner with YOPD: (1) Psychosocial impact, (2) Impact on taking care of children, (3) Impact on working life, (4) Impact on intimacy and (sexual) relationships, (5) Impact on daily life, (6) Acceptance and other coping strategies, (7) Thoughts about the future, (8) Autonomy and (9) Caregiver support. DISCUSSION: This study provides important findings that will inform future interventions that aim to reduce or even prevent caregiver burden, as well as to inform healthcare professionals to recognize the needs of caregivers of people with YOPD.

Indexed as

Age of OnsetCaregiversParkinson DiseaseQualitative ResearchAdaptation, PsychologicalAdultAgedFemaleHumansInterviews as TopicMaleMiddle AgedSpousesCaregiversParkinson’s diseaseQualitative researchQuality of lifeYoung onset Parkinson’s disease

Identifiers

PMID38861033
PMCPMC11319367

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.