Evidence map›Paper›PMID 38846320›Full record

ArticleJACC. Advances2024

Key Psychosocial Health Outcomes and Association With Resilience Among Patients With Adult Congenital Heart Disease.

Jill M Steiner, Katherine Nassans, Lyndia Brumback, Karen K Stout, Chris T Longenecker, Joyce P Yi-Frazier, J Randall Curtis, Abby R Rosenberg

Registry-linked trialAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in JACC. Advances, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06952933 (Psychological Trauma, Post-Traumatic Stress Disorder, and Resilience in Adults With Congenital Heart Disease), which is not on this map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06952933 recruitingnot on this mapstarted 2025, after this paper: background citation

Psychological Trauma, Post-Traumatic Stress Disorder, and Resilience in Adults With Congenital Heart Disease

Typeobservational_patient_registrySponsorDartmouth-Hitchcock Medical CenterRan2025 to 2026Enrolled1,000ConditionsAdult Congenital Heart Disease, Congenital Heart Disease, PTSDArmsOther
3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Article
  2. Article
  3. Living with congenital heart disease: a qualitative study to explore psychosocial impacts in adulthood.International journal of cardiology. Congenital heart disease · 2025
    Article
  4. Article
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

8 authors.

Jill M SteinerDivision of Cardiology, Department of Medicine & Cambia Palliative Care Center of Excellence, University of Washington, Seattle, Washington, USA.
Katherine NassansDivision of Cardiology, Department of Medicine, University of Washington, Seattle, Washington, USA.
Lyndia BrumbackDepartment of Biostatistics, University of Washington, Seattle, Washington, USA.
Karen K StoutDivision of Cardiology, Department of Medicine, University of Washington, Seattle, Washington, USA.
Chris T LongeneckerDivision of Cardiology and Department of Global Health, University of Washington, Seattle, Washington, USA.
Joyce P Yi-FrazierCenter for Clinical and Translational Research, Seattle Children's Research Institute, Seattle, Washington, USA.
J Randall CurtisDivision of Pulmonary, Critical Care and Sleep Medicine, Department of Medicine & Cambia Palliative Care Center of Excellence, University of Washington, Harborview Medical Center, Seattle, Washington, USA.
Abby R RosenbergDepartment of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute & Department of Pediatrics, Harvard Medical School, Boston, Massachusetts, USA.

Funding

Transform Dissemination and Implementation Science in CTSA ProgramsUL1TR002319 · NCATS · UNIVERSITY OF WASHINGTON · PI John K. Amory · 2017 to 2026
$100.0M
Assessing and Promoting Resilience in Adults with Adult Congenital Heart DiseaseK23HL151801 · NHLBI · UNIVERSITY OF WASHINGTON · PI STEINER, JILL MARIE · 2021 to 2025
$920k
NCATS NIH HHS UL1 TR002319NHLBI NIH HHS K23 HL151801
6 · The paper itself

Abstract

backgroundAdult congenital heart disease (ACHD) can negatively impact quality of life (QOL). Strengthening resilience may improve this and other psychosocial outcomes important for living a meaningful life.

objectivesThe purpose of this study was to describe resilience and key psychosocial health outcomes in ACHD and evaluate the associations between resilience and these outcomes.

methodsWe conducted a prospective cohort study of outpatients with moderate or complex ACHD between May 2021 and June 2022. Participants completed surveys at baseline and 3 months, evaluating resilience (Connor-Davidson Resilience Scale-10), health-related QOL (EQ5D-3L, linear analog scale), health status (Euroqol visual analog scale), self-competence (Perceived Competence Scale), and psychological symptom burden (Hospital Anxiety and Depression Scale) and distress (Kessler-6).

resultsThe mean participant age (N = 138) was 41 ± 14 years, 51% were female, and 83% self-identified as non-Hispanic White. ACHD was moderate for 75%; 57% were physiologic class B. Mean baseline resilience score (Connor-Davidson Resilience Scale-10) was 29.20 ± 7.54. Participants had relatively good health-related QOL, health status, and self-competence, and low psychological symptom burden and distress. Higher baseline resilience was associated with better values of all outcomes at 3 months (eg, 1 point higher resilience was associated with 0.92 higher linear analog scale; 95% CI: 0.52-1.32) with or without adjustment for demographics. After further adjusting for the baseline psychosocial measure, only the association between resilience and QOL measures at 3 months remained statistically significant.

conclusionsResilience is positively associated with health-related QOL for outpatients with moderate or complex ACHD, though relationships are small in magnitude. Study findings can guide the application of resilience-building interventions to the ACHD population.

Indexed as

congenital heart diseasemental healthquality of liferesiliencewell-being

Identifiers

PMID38846320
PMCPMC11156219

What OpenQuestion holds

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.