Evidence map›Paper›PMID 38842906›Full record

ArticleThe Hastings Center report2024

Better Conversations for Better Informed Consent: Talking with Surgical Patients.

Margaret L Schwarze, Robert M Arnold, Justin T Clapp, Jacqueline M Kruser

Abstract read
In one paragraph

Article in The Hastings Center report, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Article
  2. Article
  3. Review
  4. Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Margaret L Schwarze
Robert M Arnold
Justin T Clapp
Jacqueline M Kruser

Funding

Training Core (I)U54AG063546 · NIA · BROWN UNIVERSITY · PI Heather Gwynn Allore · 2019 to 2026
$125.9M
Establishing the science behind Alzheimer's recruitment registries: opportunities for increasing diversity and accelerating enrollment into trialsR01AG063954 · NIA · BANNER HEALTH · PI BLEAKLEY, AMY, LANGBAUM, JESSICA BROOKE · 2019 to 2023
$9.6M
A Randomized Clinical Trial of Scenario Planning for Older Adults with Serious InjuryR01AG078242 · NIA · UNIVERSITY OF WISCONSIN-MADISON · PI Margaret Schwarze · 2022 to 2026
$3.6M
Improving shared decision making in lung diseaseR01HL155306 · NHLBI · UNIVERSITY OF PENNSYLVANIA · PI HART, JOANNA LEE · 2021 to 2025
$3.5M
Adapting supported decision making to promote wellbeing and improve health outcomes for persons living with Alzheimer's disease and Alzheimer's disease related dementiasR01AG077111 · NIA · UNIVERSITY OF PENNSYLVANIA · PI Emily Largent · 2022 to 2026
$3.1M
Best Case/Worst Case: A Multisite Randomized Clinical Trial of Scenario Planning for Patients with End-Stage Kidney DiseaseR01AG065365 · NIA · UNIVERSITY OF WISCONSIN-MADISON · PI SCHWARZE, MARGARET · 2020 to 2024
$3.0M
Optimizing Time-Limited Trials of Mechanical Ventilation in Acute Respiratory Failure: A Mixed Methods Observational StudyR01HL168474 · NHLBI · UNIVERSITY OF WISCONSIN-MADISON · PI Jacqueline Marie Kruser · 2023 to 2026
$2.7M
CHANGE OF GRANTEE INSTITUTION K23 HL146890 A Systems Approach to Align ICU Care with Patient Treatment GoalsK23HL146890 · NHLBI · UNIVERSITY OF WISCONSIN-MADISON · PI KRUSER, JACQUELINE MARIE · 2019 to 2023
$877k
Use of systems engineering to evaluate the initiation of life-supporting treatments in older adults with life-limiting illnessK24AG073476 · NIA · UNIVERSITY OF WISCONSIN-MADISON · PI SCHWARZE, MARGARET · 2021 to 2025
$713k
NHLBI NIH HHS K23 HL146890NHLBI NIH HHS R01 HL155306NHLBI NIH HHS R01 HL168474NIA NIH HHS K24 AG073476NIA NIH HHS R01 AG063954NIA NIH HHS R01 AG065365NIA NIH HHS R01 AG077111NIA NIH HHS R01 AG078242NIA NIH HHS U54 AG063546NIH HHS K24AG073476NIH HHS R01AG063954NIH HHS R01AG065365NIH HHS R01AG077111NIH HHS R01AG078242NIH HHS R01HL155306NIH HHS R01HL168474NIH HHS U54AG063546
6 · The paper itself

Abstract

For more than sixty years, surgeons have used bioethical strategies to promote patient self-determination, many of these now collectively described as "informed consent." Yet the core framework-understanding, risks, benefits, and alternatives-fails to support patients in deliberation about treatment. We find that surgeons translate this framework into an overly complicated technical explanation of disease and treatment and an overly simplified narrative that surgery will "fix" the problem. They omit critical information about the goals and downsides of surgery and present untenable options as a matter of patient choice. We propose a novel framework called "better conversations." Herein, surgeons provide context about clinical norms, establish the goals of surgery, and comprehensively delineate the downsides of surgery to generate a deliberative space for patients to consider whether surgery is right for them. This paradigm shift meets the standards for informed consent, supports deliberation, and allows patients to anticipate and prepare for the experience of treatment.

Indexed as

Informed ConsentPhysician-Patient RelationsCommunicationDecision MakingHumansPersonal AutonomySurgical Procedures, Operativebioethicsclinical ethicsclinician communicationdoctor‐patient relationshipinformed consentshared decision‐makingsurgerytreatment goals

Identifiers

PMID38842906
PMCPMC11728753

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.