Evidence map›Paper›PMID 38837053›Full record

ArticleBundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz2024

[The Medical Informatics Initiative at a glance-establishing a health research data infrastructure in Germany].

Sebastian C Semler, Martin Boeker, Roland Eils, Dagmar Krefting, Markus Loeffler, Jens Bussmann, Frank Wissing, Hans-Ulrich Prokosch

Abstract readEnglish Abstract
In one paragraph

Article in Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed.

  1. Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Sebastian C SemlerKoordinationsstelle der Medizininformatik-Initiative (MII), TMF - Technologie- und Methodenplattform für die vernetzte medizinische Forschung e. V., Berlin, Charlottenstraße 42, 10117, Berlin, Deutschland. sebastian.semler@tmf-ev.de.ORCID http://orcid.org/0000-0001-8547-6785
Martin BoekerInstitut für Künstliche Intelligenz und Informatik in der Medizin, Lehrstuhl für Medizinische Informatik, Klinikum rechts der Isar, School of Medicine and Health, Technische Universität München, München, Deutschland.ORCID http://orcid.org/0000-0003-2972-2042
Roland EilsHealth Data Science Unit, Medizinische Fakultät Heidelberg, Universität Heidelberg, Heidelberg, Deutschland.
Dagmar KreftingInstitut für Medizinische Informatik, Universitätsmedizin Göttingen, Göttingen, Deutschland.ORCID http://orcid.org/0000-0002-7238-5339
Markus LoefflerInstitut für Medizinische Informatik, Statistik und Epidemiologie, Universität Leipzig, Leipzig, Deutschland.
Jens BussmannVUD Verband der Universitätsklinika Deutschlands e. V., Berlin, Deutschland.
Frank WissingMFT Medizinischer Fakultätentag der Bundesrepublik Deutschland e. V., Berlin, Deutschland.
Hans-Ulrich ProkoschLehrstuhl für Medizinische Informatik, Friedrich-Alexander-Universität Erlangen-Nürnberg, Erlangen, Deutschland.ORCID http://orcid.org/0000-0001-6200-753X

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

The Medical Informatics Initiative (MII) funded by the Federal Ministry of Education and Research (BMBF) 2016-2027 is successfully laying the foundations for data-based medicine in Germany. As part of this funding, 51 new professorships, 21 junior research groups, and various new degree programs have been established to strengthen teaching, training, and continuing education in the field of medical informatics and to improve expertise in medical data sciences. A joint decentralized federated research data infrastructure encompassing the entire university medical center and its partners was created in the form of data integration centers (DIC) at all locations and the German Portal for Medical Research Data (FDPG) as a central access point. A modular core dataset (KDS) was defined and implemented for the secondary use of patient treatment data with consistent use of international standards (e.g., FHIR, SNOMED CT, and LOINC). An officially approved nationwide broad consent was introduced as the legal basis. The first data exports and data use projects have been carried out, embedded in an overarching usage policy and standardized contractual regulations. The further development of the MII health research data infrastructures within the cooperative framework of the Network of University Medicine (NUM) offers an excellent starting point for a German contribution to the upcoming European Health Data Space (EHDS), which opens opportunities for Germany as a medical research location.

Indexed as

Biomedical ResearchMedical InformaticsGermanyHealth Services ResearchHumansModels, OrganizationalData use and accessMedical informaticsResearch data infrastructureSecondary use of health dataStandardization

Identifiers

PMID38837053
PMCPMC11166846

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.