Evidence map›Paper›PMID 38832537›Full record

ArticleGlobal health action2024

Adaptive adjustment to the needs of families caring for children and adolescents with physical disabilities in north-eastern Tanzania: a grounded-theory study.

Elia Asanterabi Swai, Haleluya Imanueli Moshi, Sia Emmanueli Msuya, Marie Lindkvist, Ann Sörlin, Klas Göran Sahlen

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Article in Global health action, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

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0cells of the map it votes in
3citing papers in PubMed
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1 · What the graph read from it

What it found

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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

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3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

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4 · The record

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5 · Who and what money

Authors and funding

6 authors.

Elia Asanterabi SwaiDepartment of Physiotherapy, Kilimanjaro Christian Medical University College (KCMUCo), Moshi, Tanzania.ORCID 0000-0002-9234-7364
Haleluya Imanueli MoshiDepartment of Physiotherapy, Kilimanjaro Christian Medical University College (KCMUCo), Moshi, Tanzania.ORCID 0000-0001-9662-8254
Sia Emmanueli MsuyaCommunity Health Department, Institute of Public Health, Kilimanjaro Christian Medical University College, Moshi, Tanzania.ORCID 0000-0003-2248-2058
Marie LindkvistDepartment of Epidemiology and Global Health, Umeå University, Umeå, Sweden.
Ann SörlinDepartment of Community Medicine and Rehabilitation, Umeå University, Umeå, Sweden.ORCID 0000-0002-8257-503X
Klas Göran SahlenDepartment of Epidemiology and Global Health, Umeå University, Umeå, Sweden.ORCID 0000-0002-3975-4868

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundFamily interactions, which are always multi-faceted, are complicated further by family members with disabilities. In resource-poor settings, policies and programmes that address the needs of and challenges faced by families are often inaccessible or unavailable. Approximately 13% of the families in Tanzania have at least one member with a disability, yet family-centred research on caring for disabled children and adolescents is scarce in this context.

objectiveThe aim is to explore the needs and challenges faced by families that care for children and adolescents with physical disabilities in the Kilimanjaro Region of north-eastern Tanzania.

methodsThis qualitative study had a constructivist grounded-theory design. In-depth interviews, using a semi-structured interview guide based on the social-capital framework, were conducted with 12 female participants aged between 24 and 80. A conceptual model of family needs, inspired by Maslow's hierarchy of needs, informed the analysis.

resultsChallenging needs were grouped into five categories, which were linked to Maslow's hierarchy of needs and related to the central concept of 'adaptive adjustment': (1) 'barely surviving'; (2) 'safety needs in jeopardy'; (3) 'sociocultural protection'; (4) 'self-esteem far beyond reach', and (5) 'dreaming of self-actualisation'.

conclusionFamilies caring for children and adolescents with physical disabilities in north-eastern Tanzania have needs that extend beyond the available and accessible resources. Families can adjust and adapt by avoiding certain situations, accepting the reality of their circumstances and exploring alternative ways of coping. A sustainable support system, including social networks, is essential for meeting basic needs and ensuring safety.

Indexed as

Adaptation, PsychologicalChildren with DisabilitiesGrounded TheoryQualitative ResearchAdolescentAdultAgedCaregiversChildFamilyFemaleHealth Services Needs and DemandHumansInterviews as TopicMaleMiddle Agedadaptive adjustmentchallenging needsPaediatricsphysical disabilitiespublic health

Identifiers

PMID38832537
PMCPMC11151795

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.