ArticleInternational journal of qualitative studies on health and well-being2024
"Being ill was the easy part": exploring cancer survivors' reactions to perceived challenges in engaging with primary healthcare.
Article in International journal of qualitative studies on health and well-being, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.
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Who cites it
3 citing papers in PubMed.
- Barriers to satisfactory primary care contacts for Swedish cancer survivors: a cross-sectional survey.Scandinavian journal of primary health care · 2026Article
- From Patient to Advocate: Navigating the Journey of Cancer Survival to Empowerment.Journal of cancer education : the official journal of the American Association for Cancer Education · 2026Article
- Patient experiences with collaborative practices between primary and specialized care in Norwegian cancer pathways: a qualitative study.BMC health services research · 2025Article
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeCancer survivors experience barriers to primary healthcare (PHC) services. The aim was to explore reactions to and opinions about perceived challenges associated with PHC access and quality among cancer survivors in Sweden, including how they have acted to adapt to challenges.
methodsFive semi-structured focus group interviews were conducted with cancer survivors (
resultsIn light of perceived challenges associated with access to adequate PHC, participants experienced that they had been forced to work hard to achieve functioning PHC contacts. The demands for self-sufficiency were associated with negative feelings such as loneliness and worry. Participants believed that cancer survivors who lack the ability to express themselves, or sufficient drive, risk missing out on necessary care due to the necessity of being an active patient.
conclusionsThe findings highlight negative patient experiences. They have implications for the organization of care for cancer survivors as they indicate a need for more efficient post-treatment coordination between cancer specialist care and PHC providers, as well as increased support for patients leaving primary cancer treatment.
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