Evidence map›Paper›PMID 38823801›Full record

ArticleBMJ paediatrics open2024

Study protocol OKRA: orientation compass for the preparing, delivering and following up on breaking bad news conversations in paediatric oncology.

Theresia Krieger, Kerstin Dittmer, David Reinert, Marc Hömberg, Andrea Tepe, Isabel Hamm, Frank Vitinius

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in BMJ paediatrics open, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Article
  2. In the end, it is the word that remains: communicating bad news in pediatric oncology.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Article
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Theresia KriegerMedical Psychology | Neuropsychology and Gender Studies & Centre for Neuropsychological Diagnostics and Intervention (CeNDI), University of Cologne and Faculty of Medicine and University Hospital Cologne, Cologne, Germany theresia.krieger@uk-koeln.de.ORCID http://orcid.org/0000-0002-7414-7318
Kerstin DittmerFaculty of Medicine, Department of Medical Psychology, Neuropsychology and Gender Studies & Centre for Neuropsychological Diagnostics and Intervention (CeNDI), University of Cologne and University Hospital Cologne, Cologne, Germany.
David ReinertFaculty of Medicine, Department of Medical Psychology, Neuropsychology and Gender Studies & Centre for Neuropsychological Diagnostics and Intervention (CeNDI), University of Cologne and University Hospital Cologne, Cologne, Germany.
Marc HömbergDepartment of Paediatric Oncology and Haematology, Children's Hospital, University of Cologne, Cologne, Germany.ORCID http://orcid.org/0000-0002-6928-7973
Andrea TepeFoundation for Children with Cancer with Affiliated Parent-House, Cologne, Germany.
Isabel HammDepartment of Psychosomatics and Psychotherapy, University of Cologne and Faculty of Medicine, Cologne, Germany.
Frank VitiniusDepartment of Psychosomatics and Psychotherapy, University of Cologne and Faculty of Medicine, Cologne, Germany.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionIn paediatric oncology, 'breaking bad news'-BBN-like cancer diagnosis is perceived as particularly challenging. Enabling a trialogue between children with their relatives and health professionals requires profound communication skills. Lacking the skills, experience or adequate support tools might result in negative consequences for both paediatric oncologists as BBN transmitters and BBN receivers as children with cancer and their relatives.In contrast to oncology for adults, multiperspective studies that explore BBN experience and specific support needs are rare, especially in Germany. Systematically developed and practically piloted support instruments, which address the specific needs of paediatric oncology, are missing.

objectiveTo systematically design and mature in practice an orientation compass for preparing, delivering and following up on BBN conversations in paediatric oncology-so-called Orientierungskompass zur Übermittlung schwerwiegender Nachrichten in der Kinderonkologie (OKRA). METHODS AND ANALYSIS: OKRA is based on a QUAL-quant mixed study design, comprising two phases. Four groups will contribute (1) experts through personal experience (representatives for children receiving BBN and their parents), (2) medical care providers and representatives of national medical societies, (3) ambulant psychosocial/psychological support providers and (4) researchers. In phase 1, multiperspective knowledge is generated through a participatory group Delphi that involves in-depth interviews, focus group discussions and questionnaires. This process culminates in formulating theses for a high-quality BBN process (output phase 1). In phase 2, based on the theses, a pilot orientation compass is designed. Through iterative cycles with the participatory action research method, this instrument will be piloted in three paediatric oncological settings and consequently optimised. ETHICS AND DISSEMINATION: OKRA was approved on 19 September 2023 by the ethics committee of the Medical Faculty of the University of Cologne (No. 23-1187). After project completion, the OKRA compass will be distributed to multidisciplinary paediatric oncology teams throughout Germany. TRIAL REGISTRATION NUMBER: DRKS00031691.

Indexed as

Truth DisclosureChildCommunicationGermanyHumansMedical OncologyNeoplasmsParentsPediatricsPhysician-Patient RelationsProfessional-Family RelationsAdolescent HealthCaregiversHealth services researchQualitative research

Identifiers

PMID38823801
PMCPMC11149114

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.