Evidence map›Paper›PMID 38816707›Full record

ArticleBMC psychiatry2024

Characterising illness stages and recovery trajectories of eating disorders in young people via remote measurement technology (STORY): a multi-centre prospective cohort study protocol.

Carina Kuehne, Matthew D Phillips, Sarah Moody, Callum Bryson, Iain C Campbell, Pauline Conde, Nicholas Cummins, Sylvane Desrivières, Judith Dineley, Richard Dobson and 44 more

Erratum issuedAbstract readMulticenter Study
PubMed Full text at PMC Publisher
In one paragraph

Article in BMC psychiatry, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed.

  1. Clinical staging for eating disorders: A scoping review and update.European psychiatry : the journal of the Association of European Psychiatrists · 2026
    Article
  2. Article
  3. Article
  4. Review
  5. Article
  6. Bone Fracture History in Women With First Episode or With Persistent Anorexia Nervosa.European eating disorders review : the journal of the Eating Disorders Association · 2025
    Article
  7. The current clinical approach to feeding and eating disorders aimed to increase personalization of management.World psychiatry : official journal of the World Psychiatric Association (WPA) · 2025
    Article
  8. Article
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

54 authors.

Carina Kuehne *Centre for Research in Eating and Weight Disorders, Institute of Psychiatry, King's College London, Psychology & Neuroscience London (IoPPN), 103 Denmark Hill, First Floor, London, SE5 8AZ, UK.
Matthew D Phillips *Centre for Research in Eating and Weight Disorders, Institute of Psychiatry, King's College London, Psychology & Neuroscience London (IoPPN), 103 Denmark Hill, First Floor, London, SE5 8AZ, UK.
Sarah MoodySchool of Health in Social Science, The University of Edinburgh, Edinburgh, UK.
Callum BrysonCentre for Research in Eating and Weight Disorders, Institute of Psychiatry, King's College London, Psychology & Neuroscience London (IoPPN), 103 Denmark Hill, First Floor, London, SE5 8AZ, UK.
Iain C CampbellCentre for Research in Eating and Weight Disorders, Institute of Psychiatry, King's College London, Psychology & Neuroscience London (IoPPN), 103 Denmark Hill, First Floor, London, SE5 8AZ, UK.
Pauline CondeDepartment of Biostatistics & Health Informatics, IoPPN, King's College London, London, UK.
Nicholas CumminsDepartment of Biostatistics & Health Informatics, IoPPN, King's College London, London, UK.
Sylvane DesrivièresSocial, Genetic & Developmental Psychiatry Centre, IoPPN, King's College London, London, UK.
Judith DineleyDepartment of Biostatistics & Health Informatics, IoPPN, King's College London, London, UK.
Richard DobsonDepartment of Biostatistics & Health Informatics, IoPPN, King's College London, London, UK.
Daire DouglasCentre for Research in Eating and Weight Disorders, Institute of Psychiatry, King's College London, Psychology & Neuroscience London (IoPPN), 103 Denmark Hill, First Floor, London, SE5 8AZ, UK.
Amos FolarinDepartment of Biostatistics & Health Informatics, IoPPN, King's College London, London, UK.
Lucy GallopCentre for Research in Eating and Weight Disorders, Institute of Psychiatry, King's College London, Psychology & Neuroscience London (IoPPN), 103 Denmark Hill, First Floor, London, SE5 8AZ, UK.
Amelia HemmingsCentre for Research in Eating and Weight Disorders, Institute of Psychiatry, King's College London, Psychology & Neuroscience London (IoPPN), 103 Denmark Hill, First Floor, London, SE5 8AZ, UK.
Başak İnceCentre for Research in Eating and Weight Disorders, Institute of Psychiatry, King's College London, Psychology & Neuroscience London (IoPPN), 103 Denmark Hill, First Floor, London, SE5 8AZ, UK.
Luke MasonDepartment of Forensic and Neurodevelopmental Science, IoPPN, King's College London, London, UK.
Zulqarnain RashidDepartment of Biostatistics & Health Informatics, IoPPN, King's College London, London, UK.
Alice BromellEDIFY, London, UK.
Christopher SimsEDIFY, London, UK.
Karina AllenCentre for Research in Eating and Weight Disorders, Institute of Psychiatry, King's College London, Psychology & Neuroscience London (IoPPN), 103 Denmark Hill, First Floor, London, SE5 8AZ, UK.
Chantal BailieCornwall Partnership NHS Foundation Trus, Bodmin, Cornwall, UK.
Parveen BainsOxford Health NHS Foundation Trust, Oxford, Oxfordshire, UK.
Mike BasherCambridgeshire and Peterborough NHS Foundation Trust, Fulbourn, Cambridgeshire, UK.
Francesca BattistiOxford Health NHS Foundation Trust, Oxford, Oxfordshire, UK.
Julian BaudinetCentre for Research in Eating and Weight Disorders, Institute of Psychiatry, King's College London, Psychology & Neuroscience London (IoPPN), 103 Denmark Hill, First Floor, London, SE5 8AZ, UK.
Katherine BristowCambridgeshire and Peterborough NHS Foundation Trust, Fulbourn, Cambridgeshire, UK.
Nicola DawsonBradford District Care NHS Foundation Trust, West Yorkshire, UK.
Lizzie DoddSouth West Yorkshire Partnership NHS Foundation Trust, Wakefield, UK.
Victoria FraterCumbria Northumberland Tyne and Wear NHS Foundation Trust, Newcastle Upon Tyne, UK.
Robert FreudenthalBarnet, Enfield and Haringey Mental Health NHS Foundation Trust, London, UK.
Beth GriptonLeeds and York Partnership NHS Foundation Trust, Leeds, UK.
Carol KanCentral and North West London NHS Foundation Trust, London, UK.
Joel W T KhorSouth West London & St. George's Mental Health NHS Trust, St George's Eating Disorders Service, London, UK.
Nicus KotzeDorset Healthcare University NHS Foundation Trust, Poole, Dorset, UK.
Stuart LaverackDerbyshire Healthcare NHS Foundation Trust, Derby, Derbyshire, UK.
Lee MartinLeeds and York Partnership NHS Foundation Trust, Leeds, UK.
Sarah MaxwellNorfolk and Suffolk NHS Foundation Trust, Norwich, Norfolk, UK.
Sarah McDonaldNottinghamshire Healthcare NHS Foundation Trust, Nottingham, UK.
Delysia McKnightNorth Staffordshire Combined Healthcare NHS Trust; Trentham, Staffordshire, UK.
Ruairidh McKayNHS Lothian - NHS Scotland, Edinburgh, UK.
Jessica MerrinSouth West Yorkshire Partnership NHS Foundation Trust, Wakefield, UK.
Mel NashDevon Partnership NHS Foundation Trust, Exeter, Devon, UK.
Dasha NichollsCentral and North West London NHS Foundation Trust, London, UK.
Shirlie PalmerSomerset Partnership NHS Foundation Trust, Taunton, UK.
Samantha PearceCornwall Partnership NHS Foundation Trus, Bodmin, Cornwall, UK.
Catherine RobertsSolent NHS Foundation Trust, Southampton, UK.
Lucy SerpellNorth East London NHS Foundation Trust, London, UK.
Emilia SeversNorth East London NHS Foundation Trust, London, UK.
Mima SimicSouth London and Maudsley NHS Foundation Trust, London, UK.
Amelia StatonNottinghamshire Healthcare NHS Foundation Trust, Nottingham, UK.
Sian WestawayHerefordshire and Worcestershire Health and Care NHS Trust, Worcester, UK.
Helen Sharpe *School of Health in Social Science, The University of Edinburgh, Edinburgh, UK.
Ulrike Schmidt *Centre for Research in Eating and Weight Disorders, Institute of Psychiatry, King's College London, Psychology & Neuroscience London (IoPPN), 103 Denmark Hill, First Floor, London, SE5 8AZ, UK. ulrike.schmidt@kcl.ac.uk.
EDIFY consortium

Funding

Medical Research Council MR/W002418/1
6 · The paper itself

Abstract

backgroundEating disorders (EDs) are serious, often chronic, conditions associated with pronounced morbidity, mortality, and dysfunction increasingly affecting young people worldwide. Illness progression, stages and recovery trajectories of EDs are still poorly characterised. The STORY study dynamically and longitudinally assesses young people with different EDs (restricting; bingeing/bulimic presentations) and illness durations (earlier; later stages) compared to healthy controls. Remote measurement technology (RMT) with active and passive sensing is used to advance understanding of the heterogeneity of earlier and more progressed clinical presentations and predictors of recovery or relapse.

methodsSTORY follows 720 young people aged 16-25 with EDs and 120 healthy controls for 12 months. Online self-report questionnaires regularly assess ED symptoms, psychiatric comorbidities, quality of life, and socioeconomic environment. Additional ongoing monitoring using multi-parametric RMT via smartphones and wearable smart rings ('Ōura ring') unobtrusively measures individuals' daily behaviour and physiology (e.g., Bluetooth connections, sleep, autonomic arousal). A subgroup of participants completes additional in-person cognitive and neuroimaging assessments at study-baseline and after 12 months. DISCUSSION: By leveraging these large-scale longitudinal data from participants across ED diagnoses and illness durations, the STORY study seeks to elucidate potential biopsychosocial predictors of outcome, their interplay with developmental and socioemotional changes, and barriers and facilitators of recovery. STORY holds the promise of providing actionable findings that can be translated into clinical practice by informing the development of both early intervention and personalised treatment that is tailored to illness stage and individual circumstances, ultimately disrupting the long-term burden of EDs on individuals and their families.

Indexed as

Feeding and Eating DisordersAdolescentAdultDisease ProgressionFemaleHumansLongitudinal StudiesMaleProspective StudiesQuality of LifeRemote Sensing TechnologySmartphoneYoung AdultClinical stagingEating disordersLongitudinal monitoringObservational cohortProgressionProspective studyRecoveryRemote measurement technology

Identifiers

PMID38816707
PMCPMC11137943

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.